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Is it advisable to do exercise when affected by Fibrous Dysplasia? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Fibrous Dysplasia to practice sports and which ones are the most recommended if you have Fibrous Dysplasia

Fibrous Dysplasia sports
8 answers
Depending on the location of FD, mobility may be severely limited. I try to do low impact yoga and walk 2 miles three times a week.

Posted May 22, 2017 by Angie 1100
Exercise is important

Regular weight-bearing exercise helps to strengthen bone, increase joint mobility and maintain a healthy weight. It is important that the exercise program is performed under the supervision of a doctor, because a person with fibrous dysplasia is at increased risk of bone fractures.

Posted Jun 9, 2017 by Lisa Hill 2050
Exercise depends on severity of bones affected.. Caution should always be used

Posted Jul 21, 2017 by Debra 2000
Yes Do the most and best you can! Short frequent sessions much more valuable.

Posted Sep 9, 2017 by Debby 1200
You can do any exercise but I wouldn't recommend heavy weight lifting

Posted Oct 7, 2017 by Kiesha brown 3050
I was prohibited from even doing sports so not entirely sure about the best exercise. Again, it depends on where is your FD and how severe is it. I am not allowed with intense exercises, so if you are like me, then to stretch and do basic exercises and walk around is already okay, as long as you have an exercise for a day. I remembered myself joining orgs to make sure I will have some exercises in school.

Posted Oct 23, 2020 by anna_d09 2500
Not if you are putting a bone at risk for fracture!

Posted Jan 17, 2021 by Emmy 2250
broke my clavicle bench pressing. That was a treat.

Posted Aug 16, 2022 by J 200

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World map of Fibrous Dysplasia

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Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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