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How do I know if I have Fibrous Dysplasia?

What signs or symptoms may make you suspect you may have Fibrous Dysplasia. People who have experience in Fibrous Dysplasia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Fibrous Dysplasia?
5 answers
The condition would be diagnosed by an orthapeadic consultant or a rheumatologist is very good with this condition.

Posted Jun 9, 2017 by Lisa Hill 2050
You will have extreme bone pain and may break bones easily

Posted Jul 21, 2017 by Debra 2000
Go to the doctor and ask them about it and they should get you checked out to see if your diagnosed with it. Plus check for symptoms.

Posted Oct 7, 2017 by Kiesha brown 3050
If you have deformities, you can have a checkup for it. If you have the same symptoms as FD, then go to a doctor. You need to be diagnosed before calling it FD though.

Posted Oct 23, 2020 by anna_d09 2500
Go to an orthopedic surgeon, have them take X-rays, MRIs and Cat scans

Posted Jan 17, 2021 by Emmy 2250

Do I have Fibrous Dysplasia?

Fibrous Dysplasia life expectancy

What is the life expectancy of someone with Fibrous Dysplasia?

10 answers
Celebrities with Fibrous Dysplasia

Celebrities with Fibrous Dysplasia

2 answers
Is Fibrous Dysplasia hereditary?

Is Fibrous Dysplasia hereditary?

12 answers
Is Fibrous Dysplasia contagious?

Is Fibrous Dysplasia contagious?

9 answers
ICD9 and ICD10 codes of Fibrous Dysplasia

ICD10 code of Fibrous Dysplasia and ICD9 code

8 answers
Natural treatment of Fibrous Dysplasia

Is there any natural treatment for Fibrous Dysplasia?

7 answers
Living with Fibrous Dysplasia

Living with Fibrous Dysplasia. How to live with Fibrous Dysplasia?

7 answers
Fibrous Dysplasia diet

Fibrous Dysplasia diet. Is there a diet which improves the quality of life ...

9 answers

World map of Fibrous Dysplasia

Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
Fibrous Dysplasia stories
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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