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Living with Fibrous Dysplasia. How to live with Fibrous Dysplasia?

Can you be happy living with Fibrous Dysplasia? What do you have to do to be happy with Fibrous Dysplasia? Living with Fibrous Dysplasia can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Fibrous Dysplasia

Living with Fibrous Dysplasia
6 answers
Sometime it is very hard living with FDP

Posted Jun 9, 2017 by Lisa Hill 2050
Yes.you can be happy if you keep a positive attitude

Posted Jul 21, 2017 by Debra 2000
Yes Attitude, spiritual belief, social support such as these close FD groups

Posted Sep 9, 2017 by Debby 1200
Sometimes you can be happy but sometimes you cant. The best way to be happy is to make sure you check with your doctor to make sure the fibrous dysplasia hasn't gotten worse

Posted Oct 7, 2017 by Kiesha brown 3050
You need to accept first you have FD until the last moment of your life. And take note of the pains you will have so that you can get ready for it. I noticed myself having more body pains in cold times and more headaches when the weather changes abruptly. Just accept, adapt, and let it be the reason for you to be stronger, to live more. That's how I live with FD. After all, it didn't stop me from excelling at school and joining clubs and organizations such as student council. Live with no regrets, so it's fine to take risks and test your limits to have the knowledge and be aware of it for future references.

Posted Oct 23, 2020 by anna_d09 2500
Try to stay positive and heating pads on sore joints and pains

Posted Jan 17, 2021 by Emmy 2250

Living with Fibrous Dysplasia

Fibrous Dysplasia life expectancy

What is the life expectancy of someone with Fibrous Dysplasia?

10 answers
Celebrities with Fibrous Dysplasia

Celebrities with Fibrous Dysplasia

2 answers
Is Fibrous Dysplasia hereditary?

Is Fibrous Dysplasia hereditary?

12 answers
Is Fibrous Dysplasia contagious?

Is Fibrous Dysplasia contagious?

9 answers
ICD9 and ICD10 codes of Fibrous Dysplasia

ICD10 code of Fibrous Dysplasia and ICD9 code

8 answers
Natural treatment of Fibrous Dysplasia

Is there any natural treatment for Fibrous Dysplasia?

7 answers
Fibrous Dysplasia diet

Fibrous Dysplasia diet. Is there a diet which improves the quality of life ...

9 answers
History of Fibrous Dysplasia

What is the history of Fibrous Dysplasia?

5 answers

World map of Fibrous Dysplasia

Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
Fibrous Dysplasia stories
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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