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What is the prevalence of Fibrous Dysplasia?

How many people does Fibrous Dysplasia affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Fibrous Dysplasia
4 answers
Fibrous Dysplasia is a rare condition

Posted Jun 9, 2017 by Lisa Hill 2050
1 in 200,000 with more females affected..from birth

Posted Jul 21, 2017 by Debra 2000
There is no prevalence of fibrous Dysplasia. Anyone can get it of natural causes

Posted Oct 7, 2017 by Kiesha brown 3050
It is rare and unpredictable because it was caused by mutations. From what I read, it affects children more as it is more a disease since birth. No gender, but yeah more on children. Mostly only one bone is affected, around 70-85 percent. Unluckily, it's not my case.

Posted Oct 23, 2020 by anna_d09 2500

Prevalence of Fibrous Dysplasia

Fibrous Dysplasia life expectancy

What is the life expectancy of someone with Fibrous Dysplasia?

10 answers
Celebrities with Fibrous Dysplasia

Celebrities with Fibrous Dysplasia

2 answers
Is Fibrous Dysplasia hereditary?

Is Fibrous Dysplasia hereditary?

12 answers
Is Fibrous Dysplasia contagious?

Is Fibrous Dysplasia contagious?

9 answers
ICD9 and ICD10 codes of Fibrous Dysplasia

ICD10 code of Fibrous Dysplasia and ICD9 code

8 answers
Natural treatment of Fibrous Dysplasia

Is there any natural treatment for Fibrous Dysplasia?

7 answers
Living with Fibrous Dysplasia

Living with Fibrous Dysplasia. How to live with Fibrous Dysplasia?

7 answers
Fibrous Dysplasia diet

Fibrous Dysplasia diet. Is there a diet which improves the quality of life ...

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World map of Fibrous Dysplasia

Find people with Fibrous Dysplasia through the map. Connect with them and share experiences. Join the Fibrous Dysplasia community.

Stories of Fibrous Dysplasia

FIBROUS DYSPLASIA STORIES
Fibrous Dysplasia stories
HELLO, MY NAME IS MICHELLE, i AM 37, MY BODY HAS A LONG LIST OF UNIQUE AILMENTS. i BELIEVE MANY STEM FROM MY HAVING mCcUNE ALBRIGHT SYNDROME. i ALSO HAVE  FIBROUS DYSPLASIA IN MANY BONES IN MY SKUL AND SUSPECT IN MY ANKLE AND SOME RIBS, i HAVE SCOLI...
Fibrous Dysplasia stories
I was diagnosed when I was in the 6th grade.  It was my birthday when they did the x-ray.  They sent me to the Oncologist to confirm it was FD and not cancer.  I have FD in my Left Tibia.  As of now, I have had 11 surgeries outpatient and inpatie...
Fibrous Dysplasia stories
After suffering with chronic pain for almost 2 years I finally got a diagnosis of Fibrous Dysplasia of the skull. I have a very large lesion in the back of head that goes all the way across the occipital bone. Doctor explained that it wraps around my...
Fibrous Dysplasia stories
Hi all. I've joined this map but it's my son who has PFD. Found out when his leg broke at age 8. Long hard struggle ever since but knowing we're not alone has made it easier. Daniel is soon 12 & struggling at secondary school but has some fab friends...
Fibrous Dysplasia stories
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Fibrous Dysplasia forum

FIBROUS DYSPLASIA FORUM
Fibrous Dysplasia forum
I was wondering if there was a spot to clarify the type of FD we have.  There is monostotic, polyostotic and McCune-Albright syndrome with polyostotic (which i have) ?  I did not see McCune-Albright syndrome on the list. 

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