A Gastroparesis interview , Multiple Systems Atrophy.

RaeLyn's interview


How did all start?

I started puking and not holding anything down and lost lots of weight

Do you already have a diagnosis? How long did it take you to get it?

Yes I have gastroparesis and was diagnosed 4 months ago

For what medical specialties have you been treated? What has been the most useful specialty for your?

Gastroparesis

What has been the most useful thing for you so far?

Getting the GJ tube and Zofran

What have been your biggest difficulties?

I’m in a wheelchair and trying to find the right pole to use for my feeding pump

How has your social and family environment reacted? Have your social or family relationships changed?

My family is 100% supportive couldn’t ask for anything more and I have lost some friends but some has stayed

What things have you stopped doing?

I don’t go out as much

What do you think about the future?

Taking it one day at a time

What would you like to do if you didn’t have your condition?

Enjoy the out doors

If you had to describe your life in a sentence, what would it be?

Miserable


Nov 2, 2017

By: RaeLyn

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