Help us to help more people
  2. Gaucher Disease
  3. Advice
Efter att jag börjat få min behandling mår jag mycket bättre, har inte ont längre osv.
by Lina
Good hospital staff
by Steffen
VPriv helps me feel normal
by Annemarie
Tell your loved ones, your friends and work people about your disease, so they know whats going on.
by Jacolene Fourie
Travelling and hanging out with my best friends.
by Sevi
My brother having the same disease made me feel less "different". Da mein Bruder dieselbe Krankheit hat, habe ich mich nie so sehr als "anders" gefühlt.
by Barbara
Working out.
by Brittany
Took Ceredase in 90s then quit for 16 years then started Elelyso. Been almost 3 years now
by Shannon
I am on enzyme replacement therapy changed my life
by Kate
Connecting with others who have the same illness.
by Kim
Support from my online "Gaucher family"
by Alf Andrew
Mi terapia de reemplazo enzimático
by Paulina
Andra tar mig mer på ”allvar” om jag skulle ha ont någonstans.
by Lina
Friends, family who were there for me.
by Steffen
My family and friends that understand my illness
by Annemarie
Get a good and experienced nurse to help with infusions
by Jacolene Fourie
My mom who is always by my side and supports me.
by Sevi
Talking to people (the same age) with the same disease helps a lot! Mit Menschen (gleichen Alters) zu sprechen, die dieselbe Krankheit haben, kann so viel helfen!
by Barbara
Eating healthy.
by Brittany
Still manage to live a full life and hope to inspire others
by Shannon
to become a member of an association made me feel better
by Kate
Hopefully, treament will help. Still getting all of the testing done.
by Kim
My spouse helps me with the treatment
by Alf Andrew
Dormir por lo menos 8 horas diarias y tomar vitaminas
by Paulina
Jag se sjukvården med andra ögon, utan dem hade jag kanske fortfarande mått dåligt.
by Lina
Accepting the facts, and taking each day as it comes.
by Steffen
Being able to work from home
by Annemarie
Be happy, always remember there is someone doing worse than you.
by Jacolene Fourie
Going to gym.
by Sevi
My friends, who never made a big deal of my illness. Meine Freunde, für die meine Krankheit nie ein Thema war.
by Barbara
Support system.
by Brittany
talking about my problem
by Kate
A super supportive husband.
by Kim
Natación
by Paulina