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Goodpasture syndrome
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Goodpasture syndrome
Advice
Advice of Goodpasture syndrome
Follow diet, take all medications.
by Darrell
Plasmapharesis
by Paul
Family support
by Hanna
My Dad died from Leukaemia when I was 12. My eldest son is 11 -determination has kept me fighting to be here for him and his two brothers
by Jade
35 plasmapheris treatments killed the GPS antibody, and the initial treatment saved my life.
by lesleygregg
Lots of rest
by Darrell
My wife has supported me no matter what
by Paul
Being so young
by Hanna
The nurses and doctors! -I have the highest amount of respect for my nurses and doctors. Most of whom had never dealt with anyone who'd had GPS before
by Jade
Sleep! I sleep for hours, I'm so grateful my family is understanding and knows I feel better after I get some rest.
by lesleygregg
Family & friends support.
by Darrell
Counselling helped me to grieve the loss of my old life and try to build a new one
by Paul
Religion
by Hanna
Plasma Exchange -I felt so much better following each cycle I had of it
by Jade
I do dialysis three times a week, and I usually throw up or get headaches during treatment. When I eat lots of veggies, fruits, and white meat, I always have smoother treatments and don't get as sick.
by lesleygregg