A Guillain-Barre Syndrome story
Dec 2, 2
I was diagnosed with Guillain Barré Syndrome on December 12, 2014 after having a sinus and ear infection. 72 hrs after my first symptoms I was completely paralyzed, only able to wiggle my thumbs. I couldn't open my eyes for 5 weeks and was on a ventilator.
Im now almost a year out and still learning to walk. It's been a long journey but I'm so thankful for my husband, dad, family and friends who have been by my side.
I enjoy telling my story and I'm more than willing to meet us or get in co tact with any other survivors or families and friends of GBS patients.
My father has Miller fisher syndrome gbs. He is 61 , He began end of January with symptoms and placed on a vent for two months. Paralyzed head to toe only able to wiggle a toe for yes and no. He is recovering very slowly. It has been 6 months and he is still quite dependent. He is breathing on his own can open his eyes and talk now... Regaining more and more facial expression daily and working on sitting at the edge of bed unsupported for s few minutes at a time. He is moving all over his body but the strength isn't there. It is getting to be slot for our family to see him continue to struggle and it is especially difficult for him he cries and wants to come home. Any words of encouragement or advice from you would be appreciated. We've been told he will walk again someday and come home it's just going to take a long time. And sometimes because it takes so long we wonder if it will happen... Feeling discouraged. We take turns going to the hospital and are with him everyday from morning until diner time. Don't know what else todo.
