The End of Life as I Knew It
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In March of 2015 I woke up one morning with a feeling like my hands and feet were asleep. I tried moving around but the feeling stayed with me all day and progressively got worse. By the 2nd night I couldn't walk into the bathroom unassisted. By the third day my tall, strong adult sons insisted I go to the ER ( my husband was on a business trip. And I was trying to wait until he returned home) I had gotten so bad my sons were unable to assist me and they had to call an ambulance.
Once at the hospital, I was admitted and it took a week to get a diagnosis. I kept asking if it could be GBS but I was largely ignored with the exception of one Dr who pointed her finger in my face and told me that it wasn't GBS and I needed to stop saying it! I had had back surgery a couple of months prior and they were stuck on blaming it on that! They ordered an MRI, as I grew progressively worse. They finally got the neuro surgeon who had performed my surgery in, to look at my MRI.....which was normal. After talking to me for only a few minutes my surgeon diagnosed me with GBS and called for my immediate transfer to another facility where I was admitted directly into the ICU. I'm still so angry at my delayed diagnosis and subsequent delayed treatment. I have had a decent recovery but remain in a wheelchair, which should NOT be!!
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