7
Living with Hirschsprung Disease. How to live with Hirschsprung Disease?
Can you be happy living with Hirschsprung Disease? What do you have to do to be happy with Hirschsprung Disease? Living with Hirschsprung Disease can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Hirschsprung Disease
You are the path to happiness, so yes!
Although times can be tough, does not mean it will be like that forever.
"Learn to dance in the rain, instead of waiting cor the storm to pass"
So if you want to be happy, make it happen.
Although times can be tough, does not mean it will be like that forever.
"Learn to dance in the rain, instead of waiting cor the storm to pass"
So if you want to be happy, make it happen.
Posted Sep 28, 2017 by Stefania 2070
Have lived with HD for 60+ years. My best advice...Listen to your body, especially with regard to your diet. Eat what helps keep you regular! Be aware that depending on how much of your large intestines may have been removed, dehydration may be an issue. Specifically, the lower bowels is where most of the liquid is drawn out of your feces...which obviously leads to loose stools, but it also means your body may have lost a significant portion of the mechanism by which your body rehydrates itself. In my case, I dehydrate very easily, so I must remember to drink lots of water hours BEFORE I work up a sweat. Also, alcohol is a huge no no...most don’t realize that the headaches associated with a hangover are primarily due to dehydration as your kidneys pull water from your system to detox the alcohol faster that your body can rehydrated itself, which takes much much longer if you are missing any large
bowel. In short, you’ll likely get the hangover before you finish your first beer...I do! Also be aware that most physicians don’t take this in to consideration when they prescibe you “ER”, Extended Release drugs...drugs that are taken up by your body in the lower bowels...which you may not have. So...my advice for living with HD...educate yourself, and be prepared to educate your personal physician. Forget about common diets and folklore about what to eat and when...your own body will tell you most of what you need to know...if it works for you, go with it.
bowel. In short, you’ll likely get the hangover before you finish your first beer...I do! Also be aware that most physicians don’t take this in to consideration when they prescibe you “ER”, Extended Release drugs...drugs that are taken up by your body in the lower bowels...which you may not have. So...my advice for living with HD...educate yourself, and be prepared to educate your personal physician. Forget about common diets and folklore about what to eat and when...your own body will tell you most of what you need to know...if it works for you, go with it.
Posted Jan 9, 2018 by Patrick 200
Not telling other people your child's disease. It's private and it should be up to him or her to discuss. If surgery was evasive leaving "deformity" scarring, plastic surgery (scar revision) is highly recommended.
Posted Oct 25, 2018 by Mallory 1500
Live as you want. Be proud of living with this disease. Listen to your body. Eat well. Stay hydrated, it will also keep your bowels working. Don’t look passed symptoms or pain, see your doctor. Stay on top of your health.
Posted May 15, 2019 by RachelPM 2500
Be happy that you are special. Be thankful you are alive. Learn what gives you an upset tummy .
Posted Feb 5, 2021 by Dawud Mohamed Idham 3550
