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Hereditary Neuropathy With Liability To Pressure Palsies HNPP
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Hereditary Neuropathy With Liability To Pressure Palsies HNPP
Advice
Advice of Hereditary Neuropathy With Liability To Pressure Palsies HNPP
Staying as healthy as possible through good nutrition, mild exercise, and rest.
by Monique
Swimming or just floating
by David
Minimizing stress
by Mary
Using wrist splints every night, and during day occasionally when needed
by Amy
Cold tempatured often makes it worst for me
by Jeanney
Yoga
by Micpsy12
Regular light exercise
by Jolene86
Pregabaline helps
by wiag
Swimming
by Sarah
Ginger! Put ginger in everything :) also pipas (sunflower seeds)
by Nat
Keeping a positive attitude
by Lyn
Writing a resource site for HNPP has been hugely stimulating https://hnppwellbeing.com
by suswatibasu
Gabapentin has helped with both my HNPP symptoms as well as my essential tremor
by Patricia
Wrist Braces
by Canada77
Avoiding neurotoxic medications listed on the CMT Neurotoxic Medications warning list.
by Monique
Epsom salt hot soak in tub
by David
Knowing and accepting my physical limits
by Mary
Avoiding activity I know will trigger trapped nerves or pain, i.e., kneeling, crossing legs, wearing heels, clapping!
by Amy
I try never resting on a nerve, example leaning in an elbow
by Jeanney
Acupuncture
by Micpsy12
Women on my mums side of the family seem to have this condition
by wiag
Resting
by Sarah
Positive outlook and staying active when I can.
by Nat
Pain killers and rest when in pain - one or the other does not work needs to be both. And a lot of shaking to get blood flow into numb spots.
by Lyn
Chair yoga has saved my life!
by suswatibasu
A healthy mostly plant based diet with good fats such as flax, hemp hearts and avacado and olive oil.
by Patricia
Modified activities
by Canada77
Listening to my body's symptoms: If I feel numbness or tingling, I try to stop whatever is causing it right away.
by Monique
Proper rest & CBD
by David
Listening to my body
by Mary
Recognising my body's limits, and respecting them.
by Amy
Surgeries do not prevent the pain from returning
by Jeanney
Herbal pain patches
by Micpsy12
Going paleo helps
by wiag
Better bed
by Sarah
Osteopath, massage, going to the local swimming pool to use the spa and resting at home with a heat pack.
by Nat
I eat a lot of ginger , cinnamon and tumeric
by Lyn
Talking to other people with HNPP is wonderful.
by suswatibasu
Educating my doctors not to apply compression to my legs and feet
by Patricia
Rest during an episode
by Canada77