Global hydranencephaly foundation: have met amazing families experiencing the same diagnosis
Rays of Sunshine Hydranencephaly Support Group on Facebook and
I have amazing therapists!
A shunt for my child, though not all hydran kids will need one. However, the majority do.
My doctors at A.I. Dupont children's hospital of Wilmington, de are some of the best in the country, especially in the Neurology department
Getting my child's reflux under control.