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Which are the symptoms of Idiopathic Hypersomnia?

See the worst symptoms of affected by Idiopathic Hypersomnia here

Idiopathic Hypersomnia symptoms
11 answers
My first choice would be getting rid of the constant sleepiness

Posted May 17, 2017 by Emma 100
Excessive sleepiness, inability to function daily and maintain a normal productive life, cannot stay awake or get out of bed easily

Posted Jun 6, 2017 by Candice 2150
With idiopathic hypersomnia you spend most of your day feeling immensely tired or sleeping. You can never feel better without the use of stimulants on a consistent, daily basis. Life becomes harder and you have to rely on your support system (consanguineous clan or close friends) for help.

Posted Jun 7, 2017 by Sarah 2050
In my opinion, the worst symptoms, is how exhausted you feel regardless of how much sleep you have. You could sleep for 8 or 10 hours, yet feel just as exhausted before you went to sleep. Also not being able to do things with friends because you need to go home to sleep.

Posted Jun 11, 2017 by Sleepykatie 250
Excessive daytime sleepiness, sleep inertia, brain fog/difficulties with concentration and general cognition, unrefreshing sleep

Posted Jun 11, 2017 by Maddy 600
Feeling sleepy all the time. This leads to cancelled plans and a constant worry about getting through the day.

Posted Oct 1, 2017 by Sarah 400
Symptoms and treatment. Yes they help, to a point. When I feel like I need to stop working, but doctors want to keep trying. Continually dropping things and so tired, but doctors say can work. Although getting SSDI sounds overwhelming and difficult too.

Posted Oct 4, 2017 by Rita 200
Excessive daytime sleepiness
Sleep inertia (difficulty waking)
Sleep drunkenness
Brain fog
possible: long sleep (sleeping for longer than average)

Posted Jan 7, 2018 by em23jjh 200
The extreme fatigue which is not alleviated by any amount of sleep is the major symptom of this disorder. This is the barrier that prevents anyone with IH from having a normal life. To eradicate this symptom would enable the ‘sufferer’ to lead as close to a normal life as possible.
I think the next problem is the lack of knowledge about the disease and this causes those with IH to be met with ignorance, disbelief and a lack of empathy about the illness and it’s debilitating consequences.

Posted Jan 10, 2018 by Donnbot 610
Inability to wake up naturally. Pain. Memory. Sleep paralysis. Forgetting people have died . Memory loss. Foggy head . Eye sight. Mobility. Socialising. Working. Self worth. The voice in our heads . The anxiety. The confusion

Posted Oct 16, 2018 by Kathy 1600
Sleep deprivation is the best way to word it. I sleep but my brain doesn’t do what it should to make me restful. I would get rid of the extreme need for more sleep, no matter how much sleep you get.

Posted Jun 27, 2019 by Susan 150

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World map of Idiopathic Hypersomnia

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Stories of Idiopathic Hypersomnia

IDIOPATHIC HYPERSOMNIA STORIES
Idiopathic Hypersomnia stories
IH is hard  to explain to anyone and nobody believes you anyways. I was always tired and they ran every single test I could think of and finally one day a doctor suggested I get a sleep study done.  The sleep study showed nothing so they set me up ...
Idiopathic Hypersomnia stories
I ha e been dealing with IH for 10 years before being diagnosed. Started when I was 19 and having a hard time staying away while driving and only got worse as time went on. Many many test and many army doctor not listening or just putting it up to an...
Idiopathic Hypersomnia stories
J'ai etait diagnostiquer HI il y a 1 ans. 
Idiopathic Hypersomnia stories
Idiopathic Hypersomnia stories

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Idiopathic Hypersomnia forum

IDIOPATHIC HYPERSOMNIA FORUM
Idiopathic Hypersomnia forum
https://sleepandbleep.weebly.com/   Visit my new website and help me build a supportive community. My goal is to provide a one-stop-shop for those with IH to seek advice from others going through similar circumstances, promote self-advocac...

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