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Which advice would you give to someone who has just been diagnosed with Inclusion Body Myositis?
See some advice from people with experience in Inclusion Body Myositis to people who have just been diagnosed with Inclusion Body Myositis
Join THE MYOSITIS ASSOCIATION
Join a regional KIT (keep in touch) Group.
Attend the annual TMA conference.
Join the FB group Inclusion Body or Myositis (open group) Group.
Read as much as possible about this terrible rare disease.
Join a regional KIT (keep in touch) Group.
Attend the annual TMA conference.
Join the FB group Inclusion Body or Myositis (open group) Group.
Read as much as possible about this terrible rare disease.
Posted Feb 23, 2019 by Craig 2500
Medical advice is limited. I would suggest joining the Myositis Organisation and on of the Inclusion Body Myositis Facebook sites.
Posted Jul 9, 2022 by Brian 2500
