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Can people with Inclusion Body Myositis work? What kind of work can they perform?

See how people with experience in Inclusion Body Myositis give their opinion about whether people with Inclusion Body Myositis can work and what kind of jobs are more appropriated for people with Inclusion Body Myositis

Inclusion Body Myositis jobs

Can people with Inclusion Body Myositis work?


Inclusion Body Myositis (IBM) is a progressive muscle disorder that primarily affects the muscles of the arms and legs. It is characterized by muscle weakness, inflammation, and the presence of abnormal protein deposits in muscle tissue. As IBM progresses, it can significantly impact a person's ability to perform physical tasks, leading to limitations in daily activities.


While IBM can pose challenges in the workplace, it does not necessarily mean that individuals with this condition cannot work. The ability to work with IBM varies from person to person, depending on the severity of their symptoms and the nature of their job.


For individuals with mild to moderate IBM:


Those with mild to moderate symptoms may still be able to work, although they may require certain accommodations or adjustments to their work environment. It is important for individuals with IBM to communicate with their employers about their condition and discuss potential modifications that can be made to support their productivity and well-being.


Some possible accommodations for individuals with IBM may include:



  • Flexible work hours: Adjusting work hours to accommodate fatigue or weakness.

  • Assistive devices: Providing tools or equipment that can help with mobility or tasks that require physical strength.

  • Workstation modifications: Making adjustments to the workspace to improve accessibility and reduce strain on muscles.

  • Job restructuring: Modifying job responsibilities or tasks to better suit the individual's abilities.


For individuals with severe IBM:


Those with severe IBM may face more significant challenges in the workplace. The progressive nature of the condition can lead to increased muscle weakness and limitations in mobility, making it difficult to perform certain job tasks.


In such cases, individuals may need to explore alternative work options that are better suited to their abilities. This could involve transitioning to a different role within the same company, seeking part-time employment, or exploring work-from-home opportunities.


It is important for individuals with severe IBM to consult with healthcare professionals, vocational rehabilitation services, and disability support organizations to explore available resources and options.


Legal protections:


In many countries, including the United States, individuals with IBM are protected by disability rights laws. These laws prohibit discrimination based on disability and require employers to provide reasonable accommodations to enable individuals with disabilities to perform their job duties.


It is crucial for individuals with IBM to be aware of their rights and to advocate for themselves in the workplace. Seeking legal advice or consulting with disability rights organizations can provide valuable guidance and support.


Conclusion:


While Inclusion Body Myositis can present challenges in the workplace, it does not necessarily mean that individuals with this condition cannot work. The ability to work with IBM depends on the severity of symptoms and the nature of the job. With appropriate accommodations, modifications, and support, many individuals with IBM can continue to be productive members of the workforce.


Diseasemaps
3 answers
You can continue working as IBM progresses slowly. However as certain muscles deteriorate, certain tasks will get more difficult to perform. IBM does not affect your mental capacity.

Posted Feb 23, 2019 by Craig 2500
Manual work would be difficult, particularly if there is heavy lifting involved. In my case, I was office based and able to continue for six years after diagnosis.

Posted Jul 9, 2022 by Brian 2500

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