Intracranial Hypertension is when there is pressure on the brain caused by a build up of CSF fluid. The build up of fluid causes major migraines/headaches, nausea and vomiting, vision loss and tinnitus just to name a few.

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INTRACRANIAL HYPERTENSION

Synonyms:
Pseudotumor Cerebri (PTC)

Types:
Idiopathic Intracranial Hypertension (IIH)
Secondary Intracranial Hypertension (SIH)
Benign Intracranial Hypertension (BIH)
Pseudotumor Cerebri (PTC)

SYSTEMS AFECTED

Digestive system
Nervous system

Symptoms

Migraines/headaches
Vision Loss
Nausea
Vomiting
Fatigue
Neck, shoulder or back pain
Double vision (diplopia)
Ringing in the ears that pulses in time with your heartbeat (pulsatile tinnitus)
Insomnia
Dizziness

Treatments

Shunt surgery or stents
Diuretics
Lumbar punctures

Specialist who treat it

Neurology Neurosurgery Ophthalmology

Intracranial Hypertension stories


LIVING WITH INTERCRANNIAL HYPERTENSION AND OTHER CONDITIONS!


In July of 2005, I had what I thought was the mother of all Migraines, which I have suffered from since I was 4 years old. I actaully lost my visoin for 2 days! That triggered an Emergency Room visit, where they directed me to a Neurologist for furth...

Views: 1183 Dec 24, 2015, 3:16 PM by Jennifer P.

MY JOURNEY


I start having haedache since I was 15 years old but I never pay any attention to it untill I was 25 I was living un kentucky And I when to México for vacations I gain 25 pounds so when I come back to kentucky my headache were worse And I star...

Views: 917 Dec 25, 2015, 2:58 AM by Patty

FROM RN TO DISABILITY; IH


Hi, I'm Shellie! I am a former RN, Director of Nursing and Legal Nurse Consultant. In all my 25+ years of nursing, I have never heard of Intracranial hypertension until I was dignosed. Like you, I have to research this little known condition. I ...

Views: 896 Dec 24, 2015, 10:53 AM by Michele

BENIGN INTRACRANIAL HYPERTENSION AND ME.


Hi I am Pam, I am from Wales in the UK.  Back in 1984 I gave birth to my first child, a 9lb6oz son called James.  After about 3 months I started to get headaches, I originally thought they were just due to tiredness and being a new mother, ...

Views: 872 Dec 30, 2015, 5:18 PM by Pamela

DIAGNOSIS


Diagnosed at 12 at an AVERAGE weight, was not overweight. Allergic to diamox, topamax. Also diagnosed with migraines Now doctors arent even sure I have IIH It was due to an injury (we're assuming from trauma at young age) 3 spinal taps, none of ...

Views: 578 Dec 24, 2015, 9:33 PM by Hanna

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Intracranial Hypertension forum


ANYONE HERE FROM WALES?


hi everyone. Is anyone here from Wales suffering with intercranial hypertension? 

Views: 492 Aug 3, 2016, 8:24 PM by Welshwitch13

ANY ONE FROM ALBUQUERQUE NM?


Just wanting to know others with IIH.  I had stent surgery in July 2016 to prevent blindness.  

Views: 423 Dec 5, 2016, 11:53 AM by Aura

LOSS THE ABILITY TO SMELL


Has anyone else with this condition lost the ability to smell?  I can only smell really really strong smells.   

Views: 312 Oct 16, 2017, 5:18 PM by Julie

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