Story about Klinefelter Syndrome .

My life with XXY

May 31, 2017

By: dm105usa


I was diagnosed with Klienfelter's 47 XXY at the age of 13. My genitals were under developed at that age. I had several tests done including a blood test. That is where they found the 47 XXY. At that time and living in South Louisiana , my parents living on a retirement income. I wasn't offered any treatments the only thing we were told was that I would be sterile. That news really fucked with my head for several years. I was a quite and shy growing up. I was deemed lazy in school ( now ADD ). I have a sister that is 3 yrs. older she was always on the honor roll in school. I was always compared to her which made me mad. I passed school but had to go to summer school to do it,twice. 

 After school I worked various jobs. Untill I found something I liked and was good at it. I started at the age of 20 working on Helicopters and have been doing so since. I have always pushed myself to do more than others. And now it's a part of me . 

As far as treatment goes I didn't start on "T" therapy untill the age of 30. I started gaining weight no matter what I did. I wound up starving myself only eating 2-3 times a week. I went to my doctor he did some tests and found out that my "T" levels weren't even detectable. And my estrogen level was way up there. I strated with the gels and creams , That didn't have the effect on me that I needed. I have been on shots ever since. 1cc 200mg every 7 days. I give myself the shots . 

 i always felt different from everyone else. As time went by my shyness went away. I stayed single untill the age of 39 when i got married. I still feel different and through years of Therapy have come to terms with the fact that I am Bi. I have never been with another man although I think of it often. But I am Very Happy with my marriage and my life and don't see me changing it in any way. I have more to write will come back at a later date and add to this. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Is Klinefelter Syndrome contagious?

Is Klinefelter Syndrome contagious?

Klinefelter Syndrome cure

Does Klinefelter Syndrome have a cure?

ICD9 and ICD10 codes of Klinefelter Syndrome

ICD10 code of Klinefelter Syndrome and ICD9 code

Klinefelter Syndrome is also known as...

Klinefelter Syndrome synonyms

Living with Klinefelter Syndrome

Living with Klinefelter Syndrome. How to live with Klinefelter Syndrom...

Klinefelter Syndrome symptoms

Which are the symptoms of Klinefelter Syndrome?

Is Klinefelter Syndrome hereditary?

Is Klinefelter Syndrome hereditary?

Klinefelter Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...