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How do I know if I have Klippel-Trénaunay-Weber Syndrome?

What signs or symptoms may make you suspect you may have Klippel-Trénaunay-Weber Syndrome. People who have experience in Klippel-Trénaunay-Weber Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Klippel-Trénaunay-Weber Syndrome?
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Do I have Klippel-Trénaunay-Weber Syndrome?

Klippel-Trénaunay-Weber Syndrome life expectancy

What is the life expectancy of someone with Klippel-Trénaunay-Weber Syndrom...

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Is Klippel-Trénaunay-Weber Syndrome contagious?

Is Klippel-Trénaunay-Weber Syndrome contagious?

ICD9 and ICD10 codes of Klippel-Trénaunay-Weber Syndrome

ICD10 code of Klippel-Trénaunay-Weber Syndrome and ICD9 code

Is Klippel-Trénaunay-Weber Syndrome hereditary?

Is Klippel-Trénaunay-Weber Syndrome hereditary?

Natural treatment of Klippel-Trénaunay-Weber Syndrome

Is there any natural treatment for Klippel-Trénaunay-Weber Syndrome?

Living with Klippel-Trénaunay-Weber Syndrome

Living with Klippel-Trénaunay-Weber Syndrome. How to live with Klippel-Trén...

1 answer
Klippel-Trénaunay-Weber Syndrome symptoms

Which are the symptoms of Klippel-Trénaunay-Weber Syndrome?

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Klippel-Trénaunay-Weber Syndrome jobs

Can people with Klippel-Trénaunay-Weber Syndrome work? What kind of work ca...

2 answers

World map of Klippel-Trénaunay-Weber Syndrome

Find people with Klippel-Trénaunay-Weber Syndrome through the map. Connect with them and share experiences. Join the Klippel-Trénaunay-Weber Syndrome community.

Stories of Klippel-Trénaunay-Weber Syndrome

KLIPPEL-TRÉNAUNAY-WEBER SYNDROME STORIES
Klippel-Trénaunay-Weber Syndrome stories
Hi my name is Monet Pavey, i am 11 yrs old and was born with ktws. It affects my left leg. i am lucky as both of my legs are the same size. i wear a compression badage during the day to keep me safe from bleeding and the swelling down. The pain is a ...
Klippel-Trénaunay-Weber Syndrome stories
Klippel-Trénaunay-Weber Syndrome stories
I was diagnosed with KTW from 3 days old. The whole right side of my body is affected along with one of my fingers and one of my toes on the left side of my body. My whole body suffers from Deep Vein Thrombosis and superficial thrombosis, lymphedema,...
Klippel-Trénaunay-Weber Syndrome stories
Ian is my 12 year old son who was born with KTS.  We live in a very small town in Northwestern Minnesota. The Drs here have never heard or seen anything about this syndrome ever. The doctor was so concerned about it that he was actually panicking. ...
Klippel-Trénaunay-Weber Syndrome stories
I'm almost 40 years old.  KT affects both legs and feet and the left arm and hand. It has caused compensatory scoliosis and I have a hump on my back.  I'm a woman and I wear a size 16 men's shoe (15 on the right foot). It's painful, I get ulcer...

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Klippel-Trénaunay-Weber Syndrome forum

KLIPPEL-TRÉNAUNAY-WEBER SYNDROME FORUM
Klippel-Trénaunay-Weber Syndrome forum
I was wondering if anyone has ever experienced a blood clot that has a certain place on your body where it comes and goes and if that particular clot showed signs of or became a bruise? And if so whether the blood clot stayed in place for longer than...
Klippel-Trénaunay-Weber Syndrome forum
I am 51 years old and have KTS with port wine stain, left arm, chest, hand. It feels like it is on fire the last few days. I havent had any relief not any physicians around to treat it. anyone else have this issue before

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