Story about Leukodystrophy .

leukodystrohpy

Aug 6, 2017


I had/have 2 daughters both with the Leukodystrohpy due to the AARS GENE. It took about 8 years (2015) to find out what the cause was, and they were are actually published in the American Genetics Journal.  My older daughter passed away in February 5 days after she turned 10.  My younger daughter will be 7 in September. 

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