Help us to help more people
  2. Leukodystrophy
  3. Advice
positive attitude
by Francis
Finding other families and getting/giving support
by Angela
Avoiding Heat
by Corey
Positive energy
by Marius
Asea
by Kai
Therapy therapy therapy!
by Amanda mother of child with PMD
Contar con un grupo de especialistas comprometidos en Minnesota
by Iván Andrés
Physical therapy
by Barb
Diagnótsico
by Karolina
Son Mason Stehr had mld
by Ryan
Being a single Dad. I cant give up or quit on my Son
by Dean
Gabapentin took the neuropathy pain away initially.
by Diane
My family support
by Harry
www.pmdfoundation.com
by Valentin
Get out! Go explore, take a long weekend. It is the only thing that keeps me going!
by Tempest Sky
Rest when I need it
by Blue Skies
Research
by Mike Healy
Finally meeting others with a child like mine.
by RandyandKat
Therapy
by Grant
knowing there are others out there worse then me
by Marina Rogers
I am almost 4. Birthday is wrong
by Isabelle Lynn
Family
by Todd
Lennon had a Stem Cell Transplant at 5 weeks old!
by loveforlennon
Family
by banedloh
Baclofen pump implant
by
keto diet controlled seizures
by slkale
Saude
by Carla
Unclassified Leukodystrophy
by Blake Sindel
Morbus Alexander
by pkarl
positive attitude
by Francis
Amitriptiline
by Corey
Eye surgery to help the diplopia
by Marius
Asea
by Kai
Don't sweat it you know your child better then anyone and will always be best at making the decisions.
by Amanda mother of child with PMD
My support system
by Barb
Inclusão
by Karolina
He lived 2001-2008
by Ryan
Working out
by Dean
Paleo Diet helps me and I try to eat mostly organic foods.
by Diane
Stairlift
by Harry
www.pmdfamiliysupport.com
by Valentin
Enjoy the little things.
by Tempest Sky
Ubiquinol
by Blue Skies
Hope
by Mike Healy
Finally learning about what this disease did to my son.
by RandyandKat
Supporters
by Grant
My religion and belief in God
by Todd
We live in one of the very few states that test at birth via newborn screen for Krabbe
by loveforlennon
Friends
by banedloh
Botox injections
by