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Is it easy to find a partner and/or maintain relationship when you have Loeys Dietz syndrome?

People with experience in Loeys Dietz syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Loeys Dietz syndrome. What are the possible difficulties in having a relationship?

Couple and Loeys Dietz syndrome
3 answers
Yes it is easy to find a partner. And as far as telling them, only you can tell when it’s right. I would encourage you to tell them, let them know what it is and how it is currently affecting you. Let them research and ask questions. Be open and honest.

Posted Feb 6, 2018 by Helene 1600
There could be difficulty with a partnership if the partner is not ready for someone with special needs against someone who is unaffected. There is more care and patience needed on a relationship to be a successful relationship.

Posted May 12, 2019 by Derek 4050
Partner need to understand the complications and care needed. There is no reason to stop you finding a partner, but having children, the risks to future generations and care needs to be understood and managed openly and properly

Posted May 14, 2019 by Glenn 2500

Couple and Loeys Dietz syndrome

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World map of Loeys Dietz syndrome

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Stories of Loeys Dietz syndrome

LOEYS DIETZ SYNDROME STORIES
Loeys Dietz syndrome stories
my family has lds my husband and 3 kids but the doctors say they dont now much about the disease
Loeys Dietz syndrome stories
I have a clinical diagnosis of Loeys-Dietz Syndrome as there has been no gene match up for me yet. I also really do not have any family to help search for a gene as those who probably were affected by it are no longer alive and I did not have any kid...

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Loeys Dietz syndrome forum

LOEYS DIETZ SYNDROME FORUM
Loeys Dietz syndrome forum
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