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Which advice would you give to someone who has just been diagnosed with Lupus?
See some advice from people with experience in Lupus to people who have just been diagnosed with Lupus
I would advise to work closely with your medical team, carefully exploring medications & their side effects. I think physical therapy in the form of mild exercise and massage therapy should become a core part of your health care. I kept trying to pretend I wasn't suffering for many years and it caused me some serious problems later on as I struggled to come to grips with my disease. Perhaps taking some extension education on chronic pain earlier in my life would have avoided this.
Posted Sep 1, 2017 by Ailsa 2000
Don’t panic! You can still live a great life! There’s a lot of truth in once you’re diagnosed, you’ve experienced your worst flare! You and your Dr’s can work together now!
Posted Oct 27, 2017 by Heather 1600
Stay positive. Keep fighting. Educate yourself and others around you as much as possible. Do your research and be prepared to ask your doctor questions (write them down before each visit). Join a group or find others who can share you experience and feelings with. Enjoy life. Be aware that you are not the same person you were before you were diagnosed.
Posted Jan 29, 2018 by Kimcita 2600
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that fight always that you take your time to analyze your life and prioritize what's really important and good in life and in your life
Posted Feb 19, 2017 by Stella 1000
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I would like that the doctors told me to explain more about the disease. my family help me in the process of rebuilding our life and accompany us in our treatment
Posted Feb 22, 2017 by Mambo 1101
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Ask your doctor any questions you have. Do not believe everything that we read on the internet. Educate ourselves and follow always the drugs as it is. Not to take anything not authorized by the doctor. Always use sun protection: sunscreen, hat, umbrella, clothes, sleeves, etc
Posted Mar 8, 2017 by Verónica 1000
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Enjoy each day and live to the full, and if you feel tired q rest. To avoid the stress
Posted May 10, 2017 by Suyai 1000
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Calm ta, breathes, can cry today, maybe a few days more vc and strong and will overcome this, I know it sounds like a oscuridão without a higher purpose, to believe tuso will get well, believe that you deserve to live and you will fight it till the end so if you get discouraged think of someone worth fighting for
Posted Jun 7, 2017 by Nataly 1000
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First I would say you are not crazy you see your body if something happened, but you are not alone I am like you and I'll support you always.
Posted Aug 31, 2017 by Prado 2000
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don't despair looking at the internet, look for groups that have the same disease to seek guidance,
search on the internet that would not have done
search on the internet that would not have done
Posted Aug 31, 2017 by lissette 2222
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That you take it easy, not be harassed and that with time, peace of mind and understanding of the family takes it well
Posted Aug 31, 2017 by Rosa Maria 2000
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THE MAIN THING IS HABERIGUAR ,SEARCH FOR INFORMATION, COMBERSAR WITH YOUR DOCTOR TO CLEAR YOUR DOUBTS, LOOK FOR APOLLO OF THE FAMILY IS THE MAIN SUPPORT THAT WE HAVE...
HAVING LUPUS DOES NOT MEAN THAT YOU ARE GOING TO DIE NOW AND THAT WHAT YOU HAVE DOES NOT MAKE YOU LESS YOU HAVE TO THINK POSITIVE AND LOOK FORWARD, LIFE IS HARD, AND FOLLOWS THE MORE ONE SHOULD LOOK AND AVANSAR WITHOUT FEARS
HAVING LUPUS DOES NOT MEAN THAT YOU ARE GOING TO DIE NOW AND THAT WHAT YOU HAVE DOES NOT MAKE YOU LESS YOU HAVE TO THINK POSITIVE AND LOOK FORWARD, LIFE IS HARD, AND FOLLOWS THE MORE ONE SHOULD LOOK AND AVANSAR WITHOUT FEARS
Posted Sep 2, 2017 by patricia santander galaz 1100
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Don't give up (to) you to move ahead life is beautiful and still with due care, all we can do without excessive!
Posted Oct 3, 2017 by FABIOLA 2010
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When I was diagnosed with Lupus, I got in despair cuz I didn't knew the disease, had never heard of before, and had never known someone with this problem. I was very ill, and he thought that he was going to die, or that he was going to live forever as a sick, full of limitations. I've spent all money I had with doctors, expensive medications, therapies, trying to find a savior to my problem (I am indebted to hj because of this).
If you had just be diagnosed today, the first, would read enough on the subject ( blind ignorance, causes fear and insecurity), parallel to this, would a meditation to calm me down, put the head in place, write a diary, do not rush out to a lot of doctors, trust in the doctor that I had diagnosed or change the logo if you don't trust, change my diet radically ( it took me too long to figure out how much the foods were making me ill, mainly sugar and industrialized). Avoid the sun, but not to enter in a paranoia crazy ( this made me very ill tb., the feeling that I was stuck, without being able to go on the street).
If you're medicated, treating injuries, and feeding properly, wait and trust, will improve, and will pass, the best advice is...try to live the best you can, the best food (healthy of course), the best companies, the best sleep, delete everything that is bad for you and you will see how much you will improve and go back to having a life many times better than the one before of Lupus (this is my case).
Make a work of self-knowledge is paramount! Think about the vc, and what makes you well, in all senses of your life ( physical, emotional, and spiritual) is very worthwhile! Lupus has given me a great discovery of myself!
If you had just be diagnosed today, the first, would read enough on the subject ( blind ignorance, causes fear and insecurity), parallel to this, would a meditation to calm me down, put the head in place, write a diary, do not rush out to a lot of doctors, trust in the doctor that I had diagnosed or change the logo if you don't trust, change my diet radically ( it took me too long to figure out how much the foods were making me ill, mainly sugar and industrialized). Avoid the sun, but not to enter in a paranoia crazy ( this made me very ill tb., the feeling that I was stuck, without being able to go on the street).
If you're medicated, treating injuries, and feeding properly, wait and trust, will improve, and will pass, the best advice is...try to live the best you can, the best food (healthy of course), the best companies, the best sleep, delete everything that is bad for you and you will see how much you will improve and go back to having a life many times better than the one before of Lupus (this is my case).
Make a work of self-knowledge is paramount! Think about the vc, and what makes you well, in all senses of your life ( physical, emotional, and spiritual) is very worthwhile! Lupus has given me a great discovery of myself!
Posted Oct 20, 2017 by Cristiane de Lucena 1000
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Be happy! There is No better medicine for the soul that sonreirte from the heart.
Acéptate and love you as you are.
It is not the end, it is the start of a new life, a life in which everything moves in waves: sometimes high, sometimes low, sometimes still.
The challenge is every day: Every day discovers in the mirror that wonderful being you are.
Don't neglect and don't let the Lupus you are finished with your dreams, on the contrary, persíguelos hard. Channel your pain and/or frustration to actually do what you thought impossible!
You're the king, the queen of your world! You are GREAT, POWERFUL! YOU ARE THE BEST!!!!!
Acéptate and love you as you are.
It is not the end, it is the start of a new life, a life in which everything moves in waves: sometimes high, sometimes low, sometimes still.
The challenge is every day: Every day discovers in the mirror that wonderful being you are.
Don't neglect and don't let the Lupus you are finished with your dreams, on the contrary, persíguelos hard. Channel your pain and/or frustration to actually do what you thought impossible!
You're the king, the queen of your world! You are GREAT, POWERFUL! YOU ARE THE BEST!!!!!
Posted Oct 22, 2017 by Denis 800
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Remember that you and your lupus, even though yours is similar to another, no two cases are the same. Before your doubt, always talk with your doctor, do not listen to the treatments miracle, if you knew a cure for lupus, the world would be telling, so don't you lower your guard, be smart and learn how to tame your wolf.
Posted Oct 24, 2017 by Pilita 2190
