Heat wraps
Sun & any heat helps
LWD and Madelung Deformity
Previous surgeries
3 years with Madelung’s deformity
Warm things on the wrist
Dauereinnahme Arcoxia 120mg
A family that are always there to help me out
Daughter had first Vickers release surgery to hopefully correct right arm
I talked to my doctor about it
Surgery helps with Ehlers Danlos and is worth it in my opinion
Ter duas famílias lindas
Custom splits made at a hand therapy clinic to wear at night.
I retired as a massage therapist
I've had 6 Surgeries So far, Hopefully i can be stronger soon.
Rest
A good support network
Never been operated on wrists due to MD and hardly ever experience pain
Relaxing baths if I’ve overworked it
15 years
Pushing the bone in place
A car so I won’t have to carry heavy things further that the distance from my door to the car
Second Vickers Release surgery scheduled for July 2018 on left arm
Tried as many treatment options as I could
I am a semi-identical twin and my parents also have a second set of fraternal twins
Ter um lindo filho
I had an ulna osteotomy and tfcc repair in 2016
I love to help others & Read other's Stories
Wrist splints
A good GP & Consultant
Knowing my strengths and weakness with my deformity
Stretching
A flexible study and work
Saw geneticist to confirm if leri Weil is also diagnosed
Pain is hard
Ganhar de presente dois filhos do coração
Strengthening exercises with a hand specialist occupational therapist
I do not want to allow my disability to be the boss of me