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Marfan Syndrome stories
After taking a decongesant with a stimulant my doctor noticed my chest moving up and down with my heartbeat. I was visiting her office for an ear infection. She performed an EKG. She then suggested a Holter Test. The Holter Test showed an ST Depressi...
Views: 755 Dec 28, 2015, 5:25 PM by Melody
My story may be quite different than most. I was adopted when I was 4 months old. Growing up, I didn't gain weight, had pain with my feet and legs, and started wearing glasses at age 8. My adoptive parents took me to doctors all my ...
Views: 734 Jan 16, 2016, 12:02 PM by Vada Powell
Hi Everyone!I want to know all of you, at least in West Central Florida, USA.37 years oldInsurance through ACA, single planPart time work graphics designer making barely a few dollars over poverty to activate ACAFlorida is a "dead zone" state where $...
Views: 682 Dec 29, 2015, 12:04 PM by Don Smith
Hi, my name is amber and I have Marfan Syndrome. I was diagnosed when I was 5yrs old. My father had it and he had passed away from it. It was been a adventure dealing with this my whole life but I have met some great people along in my journey.
Views: 601 by Amber
AD at Februar 2010
strong survivor
Marfan Syndrome forum
Hello everybody,
my son suffers marfan syndrome. At the moment he only wears glasses, but we contemplate the possibility of surgery... after the operation, the eyes syntomps can get worse?
thanks for the advice
Views: 421 Jan 27, 2016, 6:59 AM by Joan
For details on the Aortic Dissection Awareness Week Events, please click Here
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