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Mastocytosis and MCAS stories
I was fist diagnosised with systemic mastocytoisis. A few years later and several medicines added to control my disease I saw a different doctor that was not certain of the first diagnosis. She wanted me to have a bone marrow biopsy to confirm. ...
Views: 1407 by Pam H.
I have had asthma and eczema since being a baby. .in fact. .I was born with urticaria..
What i perceived as normal I learnt later in life was not.
Fast forward ..allot of strange symptoms. .allot of diagnosis. .allot of searching for answers..
Und...
I was sitting in the tub on January 2010 evening When all of a sudden I couldn't breathe . I stood up And I turned blood red from head to toe .They had to call an ambulance I was in full-blown anaphylactic shock And they didn't know if I was going to...
I will update complete story today after my allergy appointment. Feeling excited and nervous all at once.
Born a healthy baby girl.
Consulted a dermatologist and went for an ECG to rule out suspected Leopard spots. (phew)
Mother waited till I was 24months old and went to do a skin biopsy to get a dianogistic...
From then, I had been following up with ...
Mastocytosis and MCAS forum
Anyone see a good doctor that treats mast cell disorders in or around GEORGIA?? Please share your doctor's name, even if you are in a nearby state! I've seen a hematologist in Gainesville, FL, and am being treated for SM due to having all the symptom...
Views: 495 Nov 9, 2016, 1:19 AM by sisterfate11469
I would like to know how mastocytosis or MCAS is diagnosed. Are there lab tests or any other test to diagnose it? I'm from Europea and I am diagnosed with chronic fatigue syndrome, postural orthostatic tachycardia syndrome and irritable bowel sy...
Views: 348 Aug 30, 2016, 11:20 AM by Sarah
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