Living with McCune Albright. How to live with McCune Albright?
Can you be happy living with McCune Albright? What do you have to do to be happy with McCune Albright? Living with McCune Albright can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with McCune Albright
Yes you can live happy Take one day at a time and always look at the brighter side of the disease. Do not dwell on the downfalls of MAS. Do things that you enjoy, rather than trying to keep up with the rest of society. Find people that understand your disease as well.
Just live. Have days that we almost forgot that we have this condition because yes, they can lead a normal life. Without any doubt we can be very happy. Has a science of its limits, and as time passes we discover that there are so many other things to be done than the things that "common people" do. Only alive!
Dear All ,
I discovered my disease when i was 19 years old.
I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull.
AFter a few years , unfortunately I discovered have it...
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.