Medications to stabilize symptoms and surgeries when needed for bone. Most is physical therapy and taking things easy. There is no specific treatment for McCune-Albright syndrome. Drugs that block estrogen production, such as testolactone, have been tried with some success.
Adrenal abnormalities (such as Cushing syndrome) may be treated with surgery to remove the adrenal glands. Gigantism and pituitary adenoma will need treatment with hormone inhibitors or surgery.
The treatments are quite distinct, since they are made according to the need of each person. A person with the síndorme is accompanied usually by a team of endokrinnaja, ortepedia oncolóica (orthopedics) and also psychologists/psychiatrists teams that deal with pain or even a quecuida of sleep (due to pain insomnia is quite common).
Remembering that I can only talk about the treatment that I know of that is in the Braisl, I don't know how is the treatment in other countries (and I have a lot of curiosity to know how it is).
Dear All ,
I discovered my disease when i was 19 years old.
I had strong and frequent headaches and , after a clinical examinations, the diagnosis was a fibrous dysplasia of the skull.
AFter a few years , unfortunately I discovered have it...
My brother and I both have FD - but I also have MAS. So little know about either disease. Difficult finding providers who really understand. Am told that we are the only sibs known to have FD.