Stay informed, and research all possibilities. Advocate for yourself and others. Make the world a better place for both children and adults -- with and without disabilities.
Maintain a balance in life, and don't give up! Enjoy the little things. Take advantage of the good days. Don't overdo it. Listen to your body. Take care of yourself -- rest, eat well, drink lots of water, take your "mito cocktail"!
To realise that everything that happens to others, doesn't necessarily happen to you or your child that is ill with MELAS! Think "What if"... with the best possible scenario!
Doctors are human and make mistakes. No one knows your future, and everyone's different. Live in the present, learn from the past, and be prepared for the future.