Menkes Disease diet. Is there a diet which improves the quality of life of people with Menkes Disease?

Are you aware of a diet that can improve the quality of life of people with Menkes Disease? Is there a diet that is suggested to avoid when having Menkes Disease? See if there is a diet that can improve the quality of life of people with Menkes Disease, recommended and to avoid food when having Menkes Disease

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Menkes Disease diet

Leland is my 9 month old baby boy who was diagnosed with Menkes on March 4 2016 he was born with low body temp crazy kinky hair light skin pigment skull deformed and very loose skin. At 8 weeks ago he started having ear infection and just constantly ...

793

3/31/16, 8:01 PM by Brandy Stewart

MATTHEW HAMILTON, JR.

My son, Matthew, was born July 31, 2009. At ten weeks old he began having seizures. After a month and a half of doctor visits and hospital stays, he was diagnosed with Menkes Disease. He passed away on May 20,2012. He was the light of our lives.

719

2/10/17, 3:39 PM by Whitney

HOW PARENTING A CHILD WITH MENKES CHANGED ALL MY EXPECTATIONS

Once we learned my son Lucas’ diagnosis of http://themenkesfoundation.org/, all our expectations went out the window. It was devastating. But it was also liberating. We had to learn that any disappointment we felt was due to comparing our new r...

616

12/18/15, 1:04 PM by Lucas

MENKESBOY MARTY

I´m a single-mum of little Marty (* May´14). When he was 9months old we have been told he´s a menkes-boy.

581

1/10/16, 4:20 PM by Marty Louis

Menkes Disease diet. Is there a diet which improves the quality of life of people with Menkes Disease?

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Menkes Disease diet

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