There are 63 people in the Menkes Disease map

Living with Menkes Disease

How to live with Menkes Disease? Can you be happy living with Menkes D...

Menkes Disease sports

Is it advisable to do exercise when affected by Menkes Disease? Which ...

Menkes Disease diagnosis

How is Menkes Disease diagnosed?

History of Menkes Disease

What is the history of Menkes Disease?

Stories of Menkes Disease

Menkes Disease stories
  Once we learned my son Lucas’ diagnosis of Menkes syndrome, all our expectations went out the window. It was devastating. But it was also liberating. We had to learn that any disappointment we felt was due to comparing our new reality w...
Menkes Disease stories
I´m a single-mum of little Marty (* May´14). When he was 9months old we have been told he´s a menkes-boy.
Menkes Disease stories
Leland is my 9 month old baby boy who was diagnosed with Menkes on March 4 2016 he was born with low body temp crazy kinky hair light skin pigment skull deformed and very loose skin. At 8 weeks ago he started having ear infection and just constantly ...
Menkes Disease stories
My son, Matthew, was born July 31, 2009. At ten weeks old he began having seizures. After a month and a half of doctor visits and hospital stays, he was diagnosed with Menkes Disease. He passed away on May 20,2012. He was the light of our lives. ...

Tell your story and help others

Tell my story

View more

Menkes Disease forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Menkes Disease

0 people with Menkes Disease have taken the SF36 survey. Mean of Menkes Disease is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Menkes Disease