What signs or symptoms may make you suspect you may have Menkes Disease. People who have experience in Menkes Disease offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

▷ How do I know if I have Menkes Disease?

Stories of Menkes Disease

MENKES DISEASE STORIES

VIEWS

BY

Leland is my 9 month old baby boy who was diagnosed with Menkes on March 4 2016 he was born with low body temp crazy kinky hair light skin pigment skull deformed and very loose skin. At 8 weeks ago he started having ear infection and just constantly ...

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3/31/16, 8:01 PM by Brandy Stewart

MATTHEW HAMILTON, JR.

My son, Matthew, was born July 31, 2009. At ten weeks old he began having seizures. After a month and a half of doctor visits and hospital stays, he was diagnosed with Menkes Disease. He passed away on May 20,2012. He was the light of our lives.

711

2/10/17, 3:39 PM by Whitney

HOW PARENTING A CHILD WITH MENKES CHANGED ALL MY EXPECTATIONS

Once we learned my son Lucas’ diagnosis of http://themenkesfoundation.org/, all our expectations went out the window. It was devastating. But it was also liberating. We had to learn that any disappointment we felt was due to comparing our new r...

611

12/18/15, 1:04 PM by Lucas

MENKESBOY MARTY

I´m a single-mum of little Marty (* May´14). When he was 9months old we have been told he´s a menkes-boy.

How do I know if I have Menkes Disease?