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What is the prevalence of Monilethrix?

How many people does Monilethrix affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Monilethrix

Monilethrix is a rare genetic hair disorder characterized by fragile, beaded hair shafts that easily break or fall out. It is estimated to affect approximately 1 in 100,000 individuals worldwide, making it a relatively uncommon condition. The prevalence may vary across different populations and regions. Monilethrix is typically inherited in an autosomal dominant or autosomal recessive pattern, meaning it can be passed down from parents to their children. Diagnosis is often made through clinical examination and microscopic hair analysis. While there is no known cure, management involves supportive measures to minimize hair damage and promote healthy hair growth.



Monilethrix is a rare genetic hair disorder characterized by abnormal hair fragility and breakage. It is estimated to affect approximately 1 in 100,000 individuals worldwide, making it a relatively uncommon condition. The prevalence may vary among different populations and ethnicities.


The condition is caused by mutations in specific genes that are involved in hair shaft formation. These mutations lead to structural abnormalities in the hair, resulting in hair that is weak, brittle, and prone to breakage. The affected hairs often have a beaded appearance, resembling a string of beads, hence the name "monilethrix" which means "string of pearls" in Greek.


Monilethrix can present at birth or develop during early childhood. The severity of the condition can vary widely, with some individuals experiencing mild symptoms while others may have more severe hair loss and scalp involvement. The hair on the scalp is most commonly affected, but other body hair such as eyebrows and eyelashes can also be involved.


Although there is currently no cure for Monilethrix, management strategies focus on minimizing hair damage and breakage. This may involve gentle hair care practices, avoiding heat styling tools, and using specialized hair products. Genetic counseling may be recommended for affected individuals and their families to understand the inheritance pattern and assess the risk of passing on the condition to future generations.


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Prevalence of Monilethrix

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World map of Monilethrix

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Stories of Monilethrix

MONILETHRIX STORIES
Monilethrix stories
Hello, I was diagnosed with Monilethrix in 1989 at the age of two. The disease has not been in my family before, therefore I am the first “mutant”. There has been no major improvement of hair growth over the years. Some slight improvement occur...
Monilethrix stories
Hello There!. I am a woman, I am 25 years old. Since I have conscience I have this condition. My father inherited this disease from my grandmother. My brother and I from my father. It's a short story, but I must say that one thing caught my att...

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