cognitive behaviour therapy
watching what I
Accepting the pain yet still living my life to the best of my ability. Finding rainbows in dewdrops. Lowering my personal expectations and embracing joy.
Family/friend/pet support
Study up on what MPS is because doctors have no clue all they want to do is prescribe pills!!!!
Diet, lymphatic drainage, physical therapy, CranialSacral release therapy, rife machine, alphastim, biomat
Taking Aleve keeps me active.
The support of friends and family that I've, unforunately, been forced to lean on far more than I'd have cared to.
Exercise
hydrotherapy
Diet, medication and appropriate exercise are vital
Appropriate Diagnosis
Dont know
Nothing no drs in hmo medicaid
Xyrem is only thing that has helped in 35 years and now doc will no longer prescribe it due to FDA regulations!! ANGRY!!! Was on 100 meds before Xyrem, which kept me a zombie. About to go back to sleeping 18 hours a day because of govt. interference!
knowing my blood panel and fixing the vitamins accordingly has helped immensely.
Learning as much as possible about my illnesses so I can advocate for myself.
Knowing my limits and staying within my energy envelope
Think positive
being grateful of all the things I still can do despite the persistent pain
Light Stretching Exercises