Help us to help more people
  2. Neurofibromatosis
  3. Advice
Knowledgeable and compassionate doctors
by Patti Hales
I'm looking for friends
by LouAnn
Been eating healthier
by Carly
Tomar carbamazepina diariamente para calmar el dolor neural de mi hijo
by Mariela
My granchlfren
by Ellen
Commution and understanding. Finding a group of people to talk to who understand what it's like to be young and chronically ill has definitely helped me fell less alone and more understood.
by Brooklynn Bates
Doing sports
by Nicole
We will find a cure #EndNF
by Nick
Physical therapy
by Colleen
Keep a positive attitude
by Dboyle
my pyschologist
by Grace
Great support from family and friends.
by Sue
Meeting others within the craniofacial community who I can relate to in more ways than one. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
LOS AMIGOS
by Juandedios
Courage
by Guy
My son he's my life
by Lilli
J'ai appris à 23 ans par hasard que j'avais la nf1 ainsi que les enfants
by Gaelle
I'm alone in this my sister avoids it like it's not a problem my dad recently passed
by Mike
Hacer valer los derechos de mi hijo
by Betsy
La meditación guiada, y las dos pausas anteriores me han ayudado a dejar la medicacion.
by Martulina
Plenty of exercise.
by Don Johnson
The NHS in Italy
by kerry
Music
by Ashley
Work
by Paulo Afonso
Supporting my local NF community is important to me
by Kristyne
God.
by Susan
I know I need help learning of this because my daughter has it.
by crystal mcalhany
An object in motion stays in motion
by Ryland
I hate my bumps.
by Roxie
I may have NF but NF doesn't have me.
by Michael
Not considering I disabled even though I am a amputee.
by Ted
Support of family and friends
by Patti Hales
Any single men
by LouAnn
Los Amigos q Siempre Juegan Con Él. ..
by Mariela
Husband
by Ellen
Hope. Never giving up the hope for a cure, or that the tumors will continue to shrink from the chemo. Without hope, we have nothing.
by Brooklynn Bates
Going a camp in the states for NF
by Nicole
Strong support system.
by Nick
Rest
by Colleen
Work with pain med doctor
by Dboyle
small milestones
by Grace
A great diet and execute program
by Sue
Advocating for the cause of craniofacial differences and involving EVERYONE in these efforts. We must raise awareness and enact change TOGETHER! ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
MIS GANAS DE VIVIR
by Juandedios
Réussite
by Guy
Never let anything or anyone get you down
by Lilli
Just found out I have cyst in my brain and diagnosed adhd
by Mike