Advice of Optic Nerve Hypoplasia

Meeting others with this condition

by CaitlinH

Validation and reassurance

by Christina

I found someone near me that understood

by Mikaila

My daughter Emma has ONH/SOD

by Christina

Being around people she knows

by Noreen

My granddaughter was recently diagnosed

by gramma

Having a supportive family is key

by Ty

Having my daughter attend a school for the blind

by CaitlinH

I found doctors that researched into her condition

by Mikaila

She was diagnosed at 2- 2 & 1/2 weeks old

by Christina

Routine

by Noreen

We are clueless and still learning

by gramma

Having an understanding and experienced healthcare team is key

by Ty

Having her in therapies

by CaitlinH

My family attempted to support me

by Mikaila

Music

by Noreen

Would love a support group in our area

by gramma

Having a medication and care schedule that works for you and your needs

by Ty