Which advice would you give to someone who has just been diagnosed with Osteogenesis Imperfecta?

See some advice from people with experience in Osteogenesis Imperfecta to people who have just been diagnosed with Osteogenesis Imperfecta

2 answers

I would suggest only one thing ..That all those whom have been just diagnosed or going for treatment .. that increase your will power and have faith... Cause except these 2 things you'll never win this battle of life ... I always had believe that one day I'll definitely walk I never imagined my life on wheelchair ... it is my biggest strength in my daily life ... Will power is the only key to get better life ...

Posted Apr 24, 2017 by Rashi 1050

Translated from french Improve translation

Your "one day at a time".

Posted Apr 25, 2017 by Elyse Foley 1000

Osteogenesis Imperfecta advice

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Stories of Osteogenesis Imperfecta

OSTEOGENESIS IMPERFECTA STORIES

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FILHOS COM OSSOS DE VIDRO, MÃES COM NERVOS DE AÇO!

_Quando meu Matheus nasceu a __gente morava em uma cidade minúscula do interior do Paraná. Ele já nasceu com muitas fraturas, mas os médicos não viram nenhuma delas, até que no dia em que completava 29 dias de vida, ele fraturou gravemente ...

837

1/23/16, 9:29 PM by Cida Santos

DAN THE MAN

I'm in that 7th grade. I live in Las Vegas, Nevada USA. I am 3'2" and 36 lbs. I use a wheelchair and keep active.

678

2/4/16, 5:55 PM by Dan The Man

MAPS

I've got Osteogenesis Imperfecta, and my son has Pulmonary Atresia with Intact Ventricular Septum. Figured I'd put that here since there's no option to add a family member or anything like that.

654

2/5/16, 11:52 PM by Katie

YAREN OI TYPE UNKNOWN

Well our oi story began on 22 th week of my wife's pregnancy.doctors have realised some bowing on both femurs of our baby girl and advised to visit an expert.lucky us that we met with Prof. Dr.Atil Yüksel.

633

2/6/16, 4:50 AM by Kahraman

ALINEMENT

I was diagnosed at a very young age. I have 3 children, one with OI type 1 and 4 grand babies and one of them has OI as well. It's been a long road but one I wouldn't have changed. My Dad pasted it on to me and my siblings. My Mom has been a wonderfu...

625

2/5/16, 10:55 PM by Charlotte

Which advice would you give to someone who has just been diagnosed with Osteogenesis Imperfecta?

See some advice from people with experience in Osteogenesis Imperfecta to people who have just been diagnosed with Osteogenesis Imperfecta

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