Which advice would you give to someone who has just been diagnosed with Osteonecrosis?

See some advice from people with experience in Osteonecrosis to people who have just been diagnosed with Osteonecrosis

Osteonecrosis, also known as avascular necrosis, is a condition where the bone tissue dies due to a lack of blood supply. If you have recently been diagnosed with osteonecrosis, it is understandable that you may be feeling overwhelmed and concerned about your future. While I am not a medical professional, I can offer some general advice that may help you navigate this challenging situation.

1. Educate Yourself

Knowledge is power, so take the time to understand osteonecrosis and its implications. Learn about the causes, symptoms, and available treatment options. Consult reputable medical sources, such as trusted websites or books, to gather accurate information. This will enable you to make informed decisions about your health and treatment plan.

2. Seek Professional Guidance

Consult with a healthcare professional who specializes in osteonecrosis, such as an orthopedic surgeon or a rheumatologist. They can provide you with a comprehensive evaluation, discuss treatment options, and address any concerns you may have. Remember to ask questions and seek clarification to ensure you fully understand your condition and the recommended course of action.

3. Follow Your Treatment Plan

Adhering to your prescribed treatment plan is crucial for managing osteonecrosis effectively. Treatment options may include medication, physical therapy, assistive devices, or in severe cases, surgery. It is important to follow your healthcare professional's advice and attend all scheduled appointments. Additionally, make any necessary lifestyle changes, such as maintaining a healthy weight and avoiding activities that may worsen your condition.

4. Seek Support

Dealing with a chronic condition like osteonecrosis can be emotionally challenging. Reach out to support networks such as friends, family, or support groups to share your experiences and feelings. Connecting with others who have faced similar challenges can provide valuable insights, encouragement, and a sense of belonging.

5. Prioritize Self-Care

Take care of yourself physically and mentally. Engage in activities that bring you joy and help reduce stress. Practice relaxation techniques, such as meditation or deep breathing exercises, to promote overall well-being. Ensure you get enough rest, eat a balanced diet, and engage in regular exercise as recommended by your healthcare professional.

6. Stay Positive and Stay Informed

While osteonecrosis may present challenges, maintaining a positive mindset can make a significant difference in your overall well-being. Stay informed about the latest advancements in osteonecrosis research and treatment options. New developments may offer hope for improved outcomes in the future.

Remember, every individual's experience with osteonecrosis is unique, and your healthcare professional is the best source of advice tailored to your specific situation. By educating yourself, seeking professional guidance, following your treatment plan, seeking support, prioritizing self-care, and maintaining a positive outlook, you can take proactive steps towards managing your osteonecrosis and living a fulfilling life.

Diseasemaps

Posted Jun 16, 2017 by Austin 4830

Breathe. Its; the hand you've been dealt. You are tough. You'll be ok. Find a good ortho who is knowledgeable on ON. Most important thing. Don't ask questions in support groups and rely only on the opinion of others. Everyone is different!! Have a good support system. Seek info.

Posted Jun 30, 2017 by Dave 2270

Seek out an AVN Specialist or request your physician to send your medical records out for review by an AVN Specialist. Unfortunately, the patient is the only one that knows how you feel...and far too often it is up to the patient to pursue the treatments they feel they need. Educate yourself, I do feel some of the AVN WebSupport Groups are helpful and have good resources and links to speed up the learning process. You can learn from others. But I agree each individuals issues are your own.

Posted Sep 27, 2017 by Alan 900

Learn everything you can about it. Learn all the options. I Find a doctor who will partner with you, and then weigh everything with knowledge. The most important thing is to trust you medical care, and and doctor.

Posted Nov 2, 2017 by Pamela 1600

Research treatments immediately and decide which one works best.

Posted Jun 11, 2018 by Rob 1500

Get an second opinion, look into the treatments get more information on it, and have a good think.

Posted Jun 11, 2018 by Megan 2500

Educate your self -become involved

Posted Jul 16, 2018 by Jenny from the block 900

Seek out a doctor that has experience in the treatment of AVN/Osteonecrosis. It is a VERY rare condition that only affects 10-12,000 people a year. Finding a doctor that understands the disease is the most difficult.

Posted Nov 13, 2018 by Scott 3050

It’s not the end of the world. You still have a life to live. Try the best that you can. Have faith that there is a remedy out there for you, not a cure, but a procedure to help alleviate some or most of your symptoms. Tell your family and close friends. You will possibly need there help at some time in the future. Again have faith. You’ve got this.

Posted Aug 27, 2019 by Cheryl 2800

Find the why. Email [email protected]
Dr Glueck is a retired endocrinologist who has done many medical studies on AVN. Ask him to do a free assessment.
He will get to the bottom of the why and your triggers.
Then you can try to preserve your bone through CD

Posted Feb 28, 2020 by Lisa j 1700

It's a rare disease so find support by looking for avascular necrosis (AVN) groups on social media sites like Facebook.

It's important to remember that there are successful treatments for osteonecrosis that take away the pain and return your physical activity.

Posted Mar 15, 2020 by Caitlin 3050

Translated from spanish Improve translation

Containment of the health care team. To receive information.

Posted May 18, 2017 by Javier 2150