The main thing I wanted when I first got mine was to be able to speak to someone with the same thing but I didn't have that available to me. It would have helped to have more information and therefore easier to come to terms with.
You are not alone. When I first had my ostomy surgery I felt alone and was afraid people would no and could tell I had one. You really can't tell and there are more people than you think out there with surgery. Research reader helps reasearch websites and books
Have humor, accept your stoma, for it saved your life. Learn to laugh at yourself. Name your stoma. Mine is named Lily, so that way when it makes noise, you can blame it on Lily. ;)
I was diagnosed with a condition called familiar Adenomatous Polyposis in 2005 after having genetic testing it turned out I never inherited it from my parents, I am the first in my family to have this terrible disease.
I had hundreds of polyps in my...
Initially diagnosed with stage II cancer in Dec of 2009 with about 10 cm of my colon removed in the Sigmoid area. No chemo or radiation was suggested. The Juravinski Cancer Clinic in Hamilton thought I was young and still fairly active and the de...
I was diagnosed with CROHN'S at age 14. It changed my life forever. Thirty years later at age 44 I have been through it all. Test after test , drug after drug , tube feeding , TPN , many many hospital stays and way too many IV's. I had a bowel resect...
I was 24 when first diagosed with FAP, but had grown up knowing I would most likely get FAP. I was the 3rd known generation to have it from my Mothers side and my Son was diagonsed at 18. However we had Genetic testing done to find out if my Grandson...