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Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008.
The Story of Joshua Parkes and how this foundation came into being.
Joshua was born on the 20th October 2008, the happiest da...
hello everyone
My son was born the 3/3/16. My son is 6 months old almost 7months old he has microcephaly, laryngomalica, dancing eyes, vocal cord palsy, brain atrophy, PRS (pierre robin sequence) and a high palate, sleep apnea, breathing probl...
Views: 531 Sep 22, 2016, 7:23 PM by Nate
My daughter was born with mild PRS and a cleft soft palate.
Views: 468 Sep 22, 2016, 7:02 PM by Stephiecar
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
Views: 390 May 16, 2017, 6:30 PM by Carol
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...
Views: 338 Aug 14, 2017, 3:50 PM by Kirstie
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