I was admitted to Queens Medical Centre, Nottingham England on 22nd may 2017.I had been unwell for a few days with headaches, by Monday afternoon i was hallucinating, double vision,vomiting gait imbalance.I was taken to hospital as my temperature was extremely high i do not remember that whole weekend or my first week in hospital apart for the hallucinations which some were terrifying. My partner was told i had a Suprasellar mass after they Cat scanned me. By the following morning they did a left frontal EVD, and a biopsy of the tumour.I then developed hydrocephalus so had a shunt inserted. I was then put on Hydrocortisone .
The Large pituitary macroadeoma crushed my pituitary gland,its non functional.I had surgery to remove some of it as i lost my vision in my left eye to 90% this is permanent.I then ended up back in with meningitis! I am under a good Endocrinologist at The Circle NHS Nottingham. I am due another MRI october 18th as still a lot of tumour in thereto have maybe more surgery and radiotherapy, or just radiotherapy. I am not the same person my partner says, my short term memory slips away. I also suffer fatigue and have had headaches since it all began plus other problems.
assisted and written by Trish (my partner)