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Pontocerebellar Hypoplasia
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Pontocerebellar Hypoplasia
Advice
Advice of Pontocerebellar Hypoplasia
Seeing doctors that have experience.
by Luke
G-Tube insertion - February 2009. Significant contributor to Ben's quality of life and health.
by Benjamin Busque
My parents are my biggest advocates
by Anna Jo
Pontocerebella Facebook group
by Kate
blended diet
by Paula
My 9mnth old son is on a variety of medications to control his dystonia that have made a great difference.
by Jessica
Finding other families affected by PCH
by Missie
My mum and dad how always fight fore me
by Malte Laanemets Åslund
Gastrotube for medication
by Finja
Testing for genetic mutations
by Luke
Pediatric doctors team at clinic.
by Benjamin Busque
She is in multiple therapies a week
by Anna Jo
Family doesn't judge
by Kate
keeping active
by Paula
Joining the facebook group has let me know that as a pch mum i am not alone
by Jessica
Lots of activities for people with disabilities
by Missie
Personal help care
by Malte Laanemets Åslund
Tough and lovely therapists
by Finja
Finding a support group
by Luke
Family.
by Benjamin Busque
My Mommy staying home to take care of my has improved my health
by Anna Jo
friends and family support
by Paula
Reading various medical studies has helped a great deal . Hust waiting on genetic test to determine the type my son has i suspect type 2
by Jessica
Having lots of supportive friends and family
by Missie
All my different swings. I love to swing and have many different swing, outside, inside, to sit on and lay down in.
by Malte Laanemets Åslund