World map of Pontocerebellar Hypoplasia View more
  2. Pontocerebellar Hypoplasia
  3. Forum
  4. Top questions
  5. Question 19
19

Is it easy to find a partner and/or maintain relationship when you have Pontocerebellar Hypoplasia?

People with experience in Pontocerebellar Hypoplasia give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Pontocerebellar Hypoplasia. What are the possible difficulties in having a relationship?

Couple and Pontocerebellar Hypoplasia
1 answer
PCH is too severe and most individuals do not live past adolescents.
Posted Aug 10, 2017 by Benjamin Busque 2620

Couple and Pontocerebellar Hypoplasia

Pontocerebellar Hypoplasia life expectancy

What is the life expectancy of someone with Pontocerebellar Hypoplasia?

4 answers
Celebrities with Pontocerebellar Hypoplasia

Celebrities with Pontocerebellar Hypoplasia

2 answers
Is Pontocerebellar Hypoplasia hereditary?

Is Pontocerebellar Hypoplasia hereditary?

4 answers
Is Pontocerebellar Hypoplasia contagious?

Is Pontocerebellar Hypoplasia contagious?

4 answers
ICD9 and ICD10 codes of Pontocerebellar Hypoplasia

ICD10 code of Pontocerebellar Hypoplasia and ICD9 code

3 answers
Natural treatment of Pontocerebellar Hypoplasia

Is there any natural treatment for Pontocerebellar Hypoplasia?

2 answers
Living with Pontocerebellar Hypoplasia

Living with Pontocerebellar Hypoplasia. How to live with Pontocerebellar Hy...

2 answers
Pontocerebellar Hypoplasia diet

Pontocerebellar Hypoplasia diet. Is there a diet which improves the quality...

3 answers

World map of Pontocerebellar Hypoplasia

Find people with Pontocerebellar Hypoplasia through the map. Connect with them and share experiences. Join the Pontocerebellar Hypoplasia community.
View map

Stories of Pontocerebellar Hypoplasia

PONTOCEREBELLAR HYPOPLASIA STORIES
Pontocerebellar Hypoplasia stories
MLSBKS0422'S STORY
My son had PCH1A, a mutation of the VRK1 gene.
Pontocerebellar Hypoplasia stories
BENJAMIN, PCH3
Ben was diagnosed at the age of one and a half with PCH3 through MRI.   Ben's condition includes Optic Nerve Atrophy, Cortical Visual Impairment, Epilepsy, Microcephaly, Club Foot, etc.  He was born in 2008 and is maintains a small stature (approx...
Pontocerebellar Hypoplasia stories
BABY PAYTON
Our beautiful little girl was diagnosed when she was 4 months old when she became very sick and ended up in the hospital for a 2 week stay. She was diagnosed by MRI. We have yet to receive a genetic diagnosis. She is now almost a year old and she has...
Pontocerebellar Hypoplasia stories
LITTLE LUKE
It didn't take long after the wedding to find out we were pregnant 🤰🏼And expecting a little boy 👶🏼We couldn't be any more excited! The day finally arrived and labor and delivery was a breeze Luke came into this world on 7-...
Pontocerebellar Hypoplasia stories
GENETIC DIAGNOSIS
We received Colton's genetic diagnosis via whole exome sequencing in September of 2015. He has PCH2 due to the TSEN54 mutation.  

Tell your story and help others

Tell my story

Pontocerebellar Hypoplasia forum

PONTOCEREBELLAR HYPOPLASIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map