World map of Porphyria


Find people with Porphyria through the map. Connect with them and share experiences. Join the Porphyria community.

There are 256 people in the map. View Map of Porphyria

May interest you


Porphyria stories


PORFYRI VARIEGATA


Views: 645 Jan 16, 2016, 10:47 AM by Lisa Lundell

CONGENITAL ERYTHROPOIETIC PORPHYRIA


Hello I am from Pakistan. When I was born, I was completely all right.  After 2 months when my mother cut my nails, there was some water. My parents checked with a skin specialist who said that I had disease of skin, (Congenital erythropoie...

Views: 622 Nov 12, 2015, 10:49 PM by Abdul Waheed Butt

BECAUSE I'M A WOMAN...


Views: 341 Dec 27, 2017, 10:28 AM by Dayle

DIAGNOSING THE UNDIAGNOSABLE


Views: 305 Mar 30, 2019, 12:50 AM by Rebekah G

BORN WITH IT


Views: 222 Feb 2, 2018, 8:36 AM by Angelrose

View more

Porphyria forum


There are not questions yet. Ask a question and get answers.

Ask a question and get answers from other users.

View more