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Advice of Porphyria
Regular exercise (moderate)
200 g of dry glucose per day ( approximately 8-14 days per month) helped me to stop attacks completely during 6 months.
Candy! Sugar without spice makes everything nice.
by Caroline M
REMOVE STRESS IN YOUR LIFE
High carb diet
2 years of phlebotomies, (a pint of blood taken out )brought my iron level down and all the blisters are minimal right now
by lorri stewart
by Rhonda Ellis
Quitting drinking helped me have fewer attacks
by Krystyna Thomas
Having daily doses of Vitamine D.
by Georgina Davies
40 mg Lexapro
by Diana Greer
Sugar loading at first hint of an attack.
by Tracy Fannin
knowing that I am no longer alone with this condition!
by Sandra Jackson
Still battling but when i do have attacks I get Heam Arginate
by Tony McLaughlin
by Bonnie Paul
Listen to the signals from my body and mind.
Avoid the sun
Monthly GnRH injections
when i play football
by Abdul Waheed Butt
My mother's example with coping: supper always, Toffees and chocolates in reserve
I live in Dunedin NZ, where winters aren't too cold and summers aren't too hot
Being diagnosed and knowing what the hell is wrong with me !...
by Lee webb
by Molly Ingerson
The support of my wife
Avoid the sun
Increasing carbs: complex in between attacks and simple sugars during attacks.
Learning to eat small carb heavy meals through the day instead of fewer big meals.
hydroxyclororquinine helps keep the porpyhrins down
by Bob bishop moms madien name wallace
I became a Vegan with a twist...
by Jane F
carbs and dextrose/glucose
El apoyo de mi familia
by eva maria
La fluoxetina me ayuda a mantener tranquila
by Eliana Carolina
Maintaining a steady complex carb intake
Exercise in moderation
Researching everything I can find about Acute Intermittent Porphyria
by Leigh Ann
Keeping my stress level down helps keep my attacks at bay.
by Rebekah G
by Natasha Ahluwalia
Absolute support and care from my husband
Watching foods that trigger; alcohol is huge
by Ann Marie
The professors Y Norman and JC Deybach always spreaded a positive message
by Kristy Patterson
Magnesium supplements have helped a little with the chronic fatigue associated with VP