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Porphyria
Advice
Advice of Porphyria
Regular exercise (moderate)
by Per
200 g of dry glucose per day ( approximately 8-14 days per month) helped me to stop attacks completely during 6 months.
by Daria
Candy! Sugar without spice makes everything nice.
by Caroline M
REMOVE STRESS IN YOUR LIFE
by Samm
High carb diet
by Tracey
2 years of phlebotomies, (a pint of blood taken out )brought my iron level down and all the blisters are minimal right now
by lorri stewart
Regular Gabapentin
by Rhonda Ellis
Quitting drinking helped me have fewer attacks
by becky
Cimetidine
by Krystyna Thomas
Turmeric
by Esmeralda
Having daily doses of Vitamine D.
by Georgina Davies
40 mg Lexapro
by Diana Greer
Sugar loading at first hint of an attack.
by Tracy Fannin
knowing that I am no longer alone with this condition!
by Sandra Jackson
Still battling but when i do have attacks I get Heam Arginate
by Tony McLaughlin
Sugar
by Bonnie Paul
Listen to the signals from my body and mind.
by Annika
Avoid the sun
by Dax
Monthly GnRH injections
by Chelle
when i play football
by Abdul Waheed Butt
My mother's example with coping: supper always, Toffees and chocolates in reserve
by Barbara
I live in Dunedin NZ, where winters aren't too cold and summers aren't too hot
by Ros
Being diagnosed and knowing what the hell is wrong with me !...
by Lee webb
Less stress
by Louise
Prayer
by Molly Ingerson
The support of my wife
by Emily
Avoid the sun
by Anne
normasang
by Ingela
Increasing carbs: complex in between attacks and simple sugars during attacks.
by Terri
Learning to eat small carb heavy meals through the day instead of fewer big meals.
by Anon
hydroxyclororquinine helps keep the porpyhrins down
by Bob bishop moms madien name wallace
I became a Vegan with a twist...
by Lica
Panhematin
by Jane F
carbs and dextrose/glucose
by Nathalie
El apoyo de mi familia
by eva maria
La fluoxetina me ayuda a mantener tranquila
by Eliana Carolina
Maintaining a steady complex carb intake
by Elliot
Exercise in moderation
by JPolaske
Researching everything I can find about Acute Intermittent Porphyria
by Dayle
Meditation
by Angelrose
Carbs help
by Leigh Ann
Keeping my stress level down helps keep my attacks at bay.
by Rebekah G
Nothing
by Natasha Ahluwalia
Absolute support and care from my husband
by NuggetMidge84
Watching foods that trigger; alcohol is huge
by Ann Marie
The professors Y Norman and JC Deybach always spreaded a positive message
by Baptiste
Diet
by Kristy Patterson
Magnesium supplements have helped a little with the chronic fatigue associated with VP
by Carollynn
Холодный вентилятор
by Julianna
Time.
by Nancy
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