How do I know if I have Prader-Willi Syndrome?

What signs or symptoms may make you suspect you may have Prader-Willi Syndrome. People who have experience in Prader-Willi Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Prader-Willi Syndrome?
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Do I have Prader-Willi Syndrome?

Living with Prader-Willi Syndrome

How to live with Prader-Willi Syndrome? Can you be happy living with Prader...

Prader-Willi Syndrome diet

Is there a diet which improves the quality of life of people with Prader-W...

Is Prader-Willi Syndrome hereditary?

Is Prader-Willi Syndrome hereditary?

Prader-Willi Syndrome advice

Which advice would you give to someone who has just been diagnosed with Pra...

Prader-Willi Syndrome life expectancy

What is the life expectancy of someone with Prader-Willi Syndrome?

Prader-Willi Syndrome symptoms

Which are the worst symptoms of Prader-Willi Syndrome?

History of Prader-Willi Syndrome

What is the history of Prader-Willi Syndrome?

Prader-Willi Syndrome cure

Does Prader-Willi Syndrome have a cure?

World map of Prader-Willi Syndrome

Find people with Prader-Willi Syndrome through the map. Connect with them and share experiences. Join the Prader-Willi Syndrome community.

Stories of Prader-Willi Syndrome

Prader-Willi Syndrome stories
Rhianna was diagnosed with Prader-Willi at a few weeks old. It would be wonderful to meet another child with the same syndrome who could become a friend to Rhianna and who lives within travelling distance of Guernsey.
Prader-Willi Syndrome stories
I am speaking on behalf of my son Bill.  He is delightful and fun, but sufferes from the hunger and anxiety that food and unscheduled events can bring. He has a wonderful sense of humor (about everything except food).  He likes to part...
Prader-Willi Syndrome stories
Born Oct 13, 2014. Diagnosed around 3 weeks old through genetic blood tests. Deletion type. NG tube used for feedings, pulse oxygen monitor, and supplemental oxygen at night. Growth hormone. Glasses. Ankle braces/ supports. Now over 1 year old, can ...
Prader-Willi Syndrome stories
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Prader-Willi Syndrome stories
Başak, was born in Milas on 18.03.2010. Symptoms of PWS from birth. In the same year, diagnosed with PWS. Başak, lived experiences of each child with PWS. Even apart from these, PWS in the literature for non-kidney failure is experiencing. PWS is c...

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Prader-Willi Syndrome forum


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Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

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