My lifesaving medicine, donated by wonderful people
Pray & meditation
Avoiding dairy and other allergens
Have a husband that supports me.
Friends that have the same diseases as me
Edinburgh getting an immunologist for PID patients
I have my grandchildren to spend time with and give me hope for the future
Ear tubes so many times I can't count as both a child and adult
Communicating with other people who share this disease.
Being real about the condition and every now and again, understand that it is a real disease and I need to have routine discipline
learning to accept my limitations
Humanism
Living in the moment
Having my friends visit me.
A collaborative care team
My active medical circle.
Fazer parte de um.grupo de pacientes e familiares com IDP
My awesome doctor who adapts my treatment to my everyday life!
My family, friends and doctors have really helped me by supporting me.
Blue Cross Blue Shield for paying for the 11000 dollar infusions every 4 weeks :)
Always staying on top of new treatments and medical discoveries.
Friends I've made on websites that encourage, pray and support me.
Having a positive attitude & being around people who love me!
Educating myself (and others!) on PI.
Having awesome doctors that care for me.
Support of family.
Being involved in the PI community
Listen to my body
Positive attitude
Enjoy myself on good days
Family for being there for support
Being a member of UKPIPS.
I am a survivor not a victim
Tympanoplasty for ear with non cholesteatoma in 2014, preventing one in that ear.