Help us to help more people
| View more
View more
Toggle navigation
Primary Intestinal Lymphangiectasia
Home
Map
Forum
Stats
Stories
Top questions
Advice
Diseasemaps
Close
Join the map
Do the survey
Login
en
English
Español
Italiano
Português
Deutsch
Čeština
Polski
Français
العربية
中文
Pусский
日本語
한국어
हिन्दी
Bahasa Melayu
Svenska
Primary Intestinal Lymphangiectasia
Advice
Advice of Primary Intestinal Lymphangiectasia
Aminoácidos de Cadena Ramificada me han ayudado a subir mi masa muscular y a lograr recuperar mi peso (aún en proceso)
by Damaris
After 7 months not knowing what is wrong,I finaly know how to help my baby
by Milena
Bristol children's hospital, have been 100% with all my sons medical needs
by Donna Anita - my son obi has 2 rare conditions
Support from family and friends
by Nicholas
No more than 10g of fat per day
by Brad
Enzimas Pancreaticas me han ayudado con la absorción de los alimentos
by Damaris
Help from doctor who help my child and save his life
by Milena
my son is only allowed 5g of fat for the whole day, very hard for a 5 year old, but he gotta do it for the rest of his life without that diet his protein leaks into his kidneys his whole body swells, his weight doubles his normal weight very scary.
by Donna Anita - my son obi has 2 rare conditions
Albumin
by Nicholas
Keep fluids up
by Brad
Una dieta muy baja en azúcar y grasas también me ha ayudado
by Damaris
Hope that in few years he will be just fine
by Milena
My son was born wit 3 spleens and reverse organs(situs inverses) too.
by Donna Anita - my son obi has 2 rare conditions
Socialising
by Nicholas
MCT Oil with meals
by Brad