Is it advisable to do exercise when affected by Progressive Osseous Heteroplasia? Which activities would you suggest and how intense should they be?

Progressive Osseous Heteroplasia (POH) is a rare genetic disorder characterized by the abnormal formation of bone in soft tissues such as muscles, tendons, and ligaments. This condition can lead to restricted movement, pain, and physical limitations. While exercise is generally beneficial for overall health, it is important to approach it with caution when affected by POH.

Consulting with a healthcare professional who is familiar with your specific condition is crucial before starting any exercise program. They can provide personalized guidance based on your individual needs and limitations. They will consider factors such as the extent of bone formation, affected areas, and overall health.

Although there is no specific exercise regimen for POH, low-impact activities are generally recommended to minimize the risk of injury and further bone formation. These activities put less stress on the joints and bones, reducing the likelihood of exacerbating symptoms. Some suitable exercises may include:

• Swimming: Swimming is a great option as it provides a full-body workout without putting excessive strain on the joints. The buoyancy of water helps support the body, reducing impact on the bones.


• Cycling: Cycling is a low-impact activity that can help improve cardiovascular fitness and strengthen leg muscles. Using a stationary bike may be preferable to minimize the risk of falls.


• Yoga: Yoga focuses on gentle stretching, flexibility, and balance. It can help improve range of motion, relieve muscle tension, and promote relaxation.


• Pilates: Pilates is a low-impact exercise method that emphasizes core strength, flexibility, and body awareness. It can be adapted to accommodate individual needs and limitations.

It is important to start slowly and gradually increase intensity to avoid overexertion and potential injury. Listening to your body and recognizing any discomfort or pain is crucial. If any exercise causes significant pain or worsens symptoms, it should be discontinued and discussed with your healthcare professional.

Regular stretching can also be beneficial for maintaining flexibility and preventing muscle tightness. However, it is important to avoid aggressive stretching that may strain or damage affected tissues.

Remember, each individual with POH may have different limitations and requirements. Therefore, it is essential to work closely with a healthcare professional to develop an exercise plan tailored to your specific needs. They can monitor your progress, make adjustments as necessary, and ensure your safety throughout the process.