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Progressive Supranuclear Palsy
Advice
Advice of Progressive Supranuclear Palsy
Suspected of having PSP June 2017
by Ian
Nothing made him feel better
by Jtaylor
Clinical trials - she has been on an experimental drug for the last 14 months
by syrilynt
I have3 daughters that help care for me
by Chickie
Balance and Falls Clinic has been beneficial.
by Roger Coburn
caregiver
by Stephanie
A minha amiga foi diagnosticada com Parkinson durante cerca de 6 anos, antes do diagnóstico de PSP
by monicasalgado
Carbidopa/Levo 25/100 12 pills a day Sinemet CR 200+50 1 day
by Joao Cravo
Knowing you are not alone
by PSP Warwickshire
None
by Charles Dunn
My Family
by Ken
Having a feeding tube for nourishment and hydration.
by Dale Perry
Family
by Tim Brown
Dad losing the ability to talk to us.
by Caroline bill
A wife and daughters who fight for me and with me ay timese
by
[email protected]
Dad loved Listening to music
by CJ Cobban (My Dad had PSP)
My mum died in 2008 after 5 years
by Roberta
physical therapy
by Kathleen Labadie
balance exercises
by AL
Ensure & Boost - meal supplements
by Michael Fleming
All of the therpies: PT, OT, Speech Therapy, Music Therapy... all of it contributed to keeping me going and having a quality of life much longer than PSP normally allows people.
by Sue
Being cared for at home
by Jonathan
My family support
by Thelys
Handicap accessible home has been a great help.
by James Rea
familly
by SCDaly
Die Hilfe der Selbsthilfegruppen
by Rita
having a diagnosis / name to what was happening to me in the beginning
by Helen Henderson
Living at home
by Maureen
movement
by Dona
going out
by jeffrey merchant
Balance therapy
by Jim
CurePSP an international non-profit organization- what helps the most is working with a Movement Disorder Specialist
by Alex Klein (CurePSP)
Supporrt from care organisations
by Kerryn
Exercise
by Julie Lamb
Ability to suction lungs because of tracheostomy and eat with j-jenostomy feeding tube to small intestine
by Ladd
I was his soul caretaker for three and a half years
by l_gar
i have loving people aronid me now,
by jeannie tubich
Muscle massages
by Karen
Applesauce with liquid Tylenol helped the constant throat clearing
by Luebbem
Family with him 24/7.
by kja811
Thick it to thicken liquids or carbonated drinks will help with the choking
by Steve
Ive never heard of it, im just looking for information
by Alisha
Hiring caregivers (multiple) helped in giving my husband and I a break from one another when I needed 24-hour care.
by Carol
Try to have Keith walk each day
by Judith
Change of diet to free from foods, no sugar or processed foods.
by SAM
We try to live an as normal as possible kind of family life
by Marrianne
Familia amante
by Roberto
STEM CELLS IS THE FUTURE CURE FOR PSP
by Anthony Cook
La tranquilidad de vida
by Yolanda
Family support
by Samantha
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