Suspected of having PSP June 2017
Nothing made him feel better
Clinical trials - she has been on an experimental drug for the last 14 months
I have3 daughters that help care for me
Balance and Falls Clinic has been beneficial.
caregiver
A minha amiga foi diagnosticada com Parkinson durante cerca de 6 anos, antes do diagnóstico de PSP
Carbidopa/Levo 25/100 12 pills a day Sinemet CR 200+50 1 day
Knowing you are not alone
My Family
Having a feeding tube for nourishment and hydration.
Family
Dad losing the ability to talk to us.
A wife and daughters who fight for me and with me ay timese
Dad loved Listening to music
My mum died in 2008 after 5 years
physical therapy
balance exercises
Ensure & Boost - meal supplements
All of the therpies: PT, OT, Speech Therapy, Music Therapy... all of it contributed to keeping me going and having a quality of life much longer than PSP normally allows people.
Being cared for at home
My family support
Handicap accessible home has been a great help.
familly
Die Hilfe der Selbsthilfegruppen
having a diagnosis / name to what was happening to me in the beginning
Living at home
movement
Balance therapy
CurePSP an international non-profit organization- what helps the most is working with a Movement Disorder Specialist
Supporrt from care organisations
Exercise
Ability to suction lungs because of tracheostomy and eat with j-jenostomy feeding tube to small intestine
I was his soul caretaker for three and a half years
i have loving people aronid me now,
Muscle massages
Applesauce with liquid Tylenol helped the constant throat clearing
Family with him 24/7.
Thick it to thicken liquids or carbonated drinks will help with the choking
Ive never heard of it, im just looking for information
Hiring caregivers (multiple) helped in giving my husband and I a break from one another when I needed 24-hour care.
Try to have Keith walk each day
Change of diet to free from foods, no sugar or processed foods.
We try to live an as normal as possible kind of family life
Familia amante
STEM CELLS IS THE FUTURE CURE FOR PSP
La tranquilidad de vida
Family support