There are 4 people in the Proteus syndrome map

Proteus syndrome diet

Is there a diet which improves the quality of life of people with Pro...

Proteus syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Do I have Proteus syndrome?

How do I know if I have Proteus syndrome?

Living with Proteus syndrome

How to live with Proteus syndrome? Can you be happy living with Proteu...

Stories of Proteus syndrome

Proteus syndrome stories
having a rare syndrome is hard at times but having my family right beside me is the best thing i can ask for. 

Tell your story and help others

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Proteus syndrome forum


Ask a question and get answers from other users.

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Statistics of Proteus syndrome

0 people with Proteus syndrome have taken the SF36 survey. Mean of Proteus syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map


Proteus syndrome